Hi all, new to group

Lynie

New Member

Joined : Jan 2016

Posts : 1

Posted 1/16/2016 6:38 PM (GMT -5)

Hi everyone,

As the heading says, I'm new to the group. I was diagnosed a few years ago, but after taking Savella for a year and a half and getting into a good workout routine, I convinced myself that I had been misdiagnosed and took myself off of the Savella. Fast forward 12 months and I've done the round of doctors, orthopedics, rheumatologists, general practice... I've had MRI's, x-rays, and everyone tells me, there's nothing wrong with me, except that I can't get comfortable enough to sleep without pain, my husband can't touch me without me saying "ouch," and I can no longer enjoy zumba class without tears of pain. I went back to they pain doctor and he said "why did you get off of the savella???" So, here I am, on day 5 of getting back on Savella, nauseous, bummed, and resigned. But other than that =) life is still good.

Lyn in GA

Rockon

Regular Member

Joined : Mar 2013

Posts : 285

Posted 1/16/2016 8:56 PM (GMT -5)

Hello. Thanks for writing an introduction. I can see that it would be an easy thing to draw the conclusion that you were misdiagnosed. I hope your body settles back into a low pain state again very soon.

Its a little bit different situation than yours, but there was a fibro study about the nocebo affect. In the placebo effect you think a med or even a sugar pill placebo makes you better because that is your expectation. In the nocebo effect there is a resistance to keep taking medicine. I guess it doesn't help that so many fibro patients are chemically sensitive. Anyways, there is a lot of the nocebo affect in fibro patients.

Hang in there, we'll be pulling for you.

Sherrine

Forum Moderator

Joined : Apr 2005

Posts : 18470

Posted 1/17/2016 8:04 AM (GMT -5)

Hi, Lyn, and welcome! Quite a few members have had success with Savella so it should kick in for you soon. You should never stop a medication without talking to your doctor first. My Mom was taking blood pressure medication and it brought her blood,pressure down to a good range so she didn't think she needed the medication any longer! She stopped it and had a stroke shortly after. The medications we usually have to take for Fibro are long term deals.

I use ibuprofen with food, Tylenol, vitamin D3, magnesium malate, and a muscle relaxer called Robaxin to help be in control of the pain and fatigue. I also walk daily as a gentle form of exercise and I pace myself when doing things. All of the above have helped me live a full and enjoyable life in spite of this illness.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about Fibro and you will learn a lot there. A good starting link would be A Thorough Explanation of Fibromyalgia. There are links about the vitamin and magnesium and how these work in the body and also a good link on how to maintain a positive attitude when you have chronic pain. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

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