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Anyone use an NSAID and Gabapentin topical cream?

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Posted 6/13/2019 11:11 AM (GMT -5)
Recently I went to a new podiatrist. She had custom orthotics made for me and now, since I seem to be having more and more toe pain which seems to be peripheral neuropathy related, she has ordered a cream that has an NSAID and gabapentin in it. At first, she ordered the cream with just the NSAID in it, which was going to be close to $70. I chose not to get that yet, and see how the orthotics worked. But after wearing them for 3 weeks and feeling much more pain in my toes, she's ordered the NSAID cream with gabapentin added. Unfortunately, with the added med, it's close to $160. WOW!
Now I have to decide which RX to choose or if I don't want either.

Anyone have any experience with topical NSAID/gabapentin cream and how did it work for you.....no matter where you used it on your body.
Thanks!
Posted 6/13/2019 11:59 PM (GMT -5)
I have a prescription topical nerve pain cream.

(I have lyme disease and have bad nerve pain)

It has several ingredients: Gabapentin,clonadine, ketamine, lidocaine (and I think one or two more - don't have the jar handy)
A compounding pharmacy can make it up.
Testing showed that the meds are not showing up in the bloodstream (which was my concern).

I had tried Gabapentin (pills) but was only willing to go so high in dose...and the lower dose didn't touch my pain.

I've only tried the pain cream a couple of times...and it did take the edge off the pain...but I was told I should be using it regularly...and more than once a day.
Posted 6/14/2019 10:33 AM (GMT -5)
Thanks Girlie. That's good info to know. I, too, started on 100mg of it, but felt I was having side effects, which I couldn't deal with at the time......so I may not have hung in there long enough. My doctor says he starts everyone off at 100mg and then works up from there. I think that's a really good idea. Too often docs start everyone at the same high dose, and then they get side-effects, and stop it all together. If I may ask about your Lyme disease.......where did you get tested? How long have you had it? I was tested about 18 years ago at a reputable lab on the east coast and it was negative. But lately, I've been thinking about getting tested again, since I have so many funky nerve things going on. We do live in the woods. Did you get fevers with it? Thanks!
Posted 6/18/2019 3:05 AM (GMT -5)
I'm taking gabapentin cream to apply on my labia as I have pudendal nerve pain (I think) but I don't know whether it's a muscular problem or a nerve problem and the cream is experimental in my country so I don't know what other ingredients if any are in the cream as it literally has nothing on the label. I've only applied it twice and for two days and I didn't notice a difference. I don't know if it's too soon to tell and if I should be using it every day and more often until it builds up in my system. I won't know any of that until I speak to the pharmacist at the pain clinic sometime in the next four weeks.
Posted 6/24/2019 9:35 AM (GMT -5)
Cathy here is a thought, ask the pharmacist to fill half of the script so that you can try it. I would just say I cannot afford the $160 price tag. Compounded meds are more expensive it seems. Am I correct that your insurance would not authorize the script?

Also keep in mind the delivery method of topical versus oral is totally different. We have had some members in the past in the CP forum get some relief with topical.
Posted 7/4/2019 2:47 AM (GMT -5)

CathyA said...
Thanks Girlie. That's good info to know. I, too, started on 100mg of it, but felt I was having side effects, which I couldn't deal with at the time......so I may not have hung in there long enough. My doctor says he starts everyone off at 100mg and then works up from there. I think that's a really good idea. Too often docs start everyone at the same high dose, and then they get side-effects, and stop it all together. If I may ask about your Lyme disease.......where did you get tested? How long have you had it? I was tested about 18 years ago at a reputable lab on the east coast and it was negative. But lately, I've been thinking about getting tested again, since I have so many funky nerve things going on. We do live in the woods. Did you get fevers with it? Thanks!

Sorry for the late reply, Cathy.

Cathy A, if you want information about Lyme disease, please go to the Lyme forum. You will find out a lot there. Thanks!

Sherrine

Post Edited By Moderator (Sherrine) : 7/4/2019 5:45:40 AM (GMT-6)

Posted 7/4/2019 6:32 AM (GMT -5)
This is the fibromyalgia forum. If you want information or give information about Lyme disease please go to the Lyme forum. There is no reason for Lyme members to come here because I always suggest that people be tested for Lyme disease when they come on this forum and I also will direct people to the Lyme forum.

We have had problems in the past of Lyme members coming here and saying that our fibro members really have Lyme disease. That’s not fair to our members. Fibromyalgia is a true illness. I will not allow that again so, please, Lyme members stay in your forum if you want to talk about Lyme disease.

Sherrine
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