Hi..I'm new here

Hey I'm new to this site. Still tryna figure out how things work. lol :) Anyways...i was looking for sites where i can talk to people going through the same thing as me. And i found this one. I dont know what I'm suppose to write here. But am really just looking for support.

I am a 20yr old, female. I was diagnosed with SLE just before i turned 18. Although my initial symptoms have all but disappeared. I still am tired alot of the times. So i sleep alot. My family thinks I''m lazy. I try to explain to them that although I may look ok...I still have the disease. But probably "Out of sight, Out of mind" ...Because I'm not psychically in pain..You know?

So i was wondering...anybody else had to deal with this? And how did you approach it?

Hi there!!! I was 19 when I was diagnosed and now I am 23. I can't relate to the out of sight out of mind but it is close to the same thing as denial, which i struggle with big time I keep telling myself it isnt here all toughI know it is. I guess wishful thinking :)! I don't really have too much of a struggle of being too tired. Occasionallly when I overdo it I get that way. My big problem (at least to me) is the pain. my doctors thinks my kidneys are more important but hey...they don't hurt or give me a hard time that I can feel so I am of course more concerned with my joint. about the being tired...do you get a good nights sleep when you sleep? Or do you wake up a lot? Maybe you could try talkiing to your doctor about a sleeping pill. I know this sounds crazy but sometimes you arent getting that deep sleep your body needs which is causing you too be so tired through out the day and the sleeping pill will get you to that point :)

I agree with the spoon thoery. That is what helped my family understand as much as they could before i was hospitalized. Now we refer to things in spoons as well :)!

Well, i know I have rambeled a lot but just wanted to say really say hi and hope you stick around :)!