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Posted 3/22/2011 8:47 PM (GMT -5)
Anyone know anything about POTS? Postural orthostatic tachycardia syndrome. My docs are thinking it might be a reason for my extreme fatigue, on top of lupus. Anyone have any experience?
Posted 3/23/2011 5:51 PM (GMT -5)
Have you been tested by the tilt table?
From what I've read is this is an important test.
The diet changes are: no alcohol, more salt, small meals, low carbs, more caffeine, tilting bed 30 degrees
Exercise: recumbent bike or swimming in moderation - 20 mins @ 3 times a week
Posted 3/23/2011 5:59 PM (GMT -5)
Thanks Joy. I have a tilt table test in the next few weeks. I know about the diet and everything, but I'm trying to find people who have it to talk to. Do you know anyone?
Posted 3/23/2011 7:58 PM (GMT -5)
No, I've only heard it mentioned on TV a few months ago.
Posted 7/14/2011 7:08 AM (GMT -5)
Hi, my name is Rebecca. I have POTS. They are now looking into some more issues. I have a positive ANA and Low white blood counts, anemia, traces of protein in my urine. just to name a few. looks like you may have similar labs as me. All I can say is it has been a unwelcomed journey. However, I get by. I send prayers your way. My POTS has forced me to disability. I am only 34 years old. Always taken care of myself. But, its in my genes. If you have any questions Please ask away!!!
Posted 7/14/2011 9:20 AM (GMT -5)
Welcome to the forum, Rebecca! There is another thread about POTS under Chronic Fatigue, if you want to look at that one.

It sounds like you're in the same boat as a lot of us- too young to be dealing with this, and still a lot of uncertainties as far as labs and possible diagnoses. I have lupus, but I generally keep an eye on the CFS forum too, since a lot of it crosses over.

Holler if you need anything!
Posted 7/15/2011 3:49 PM (GMT -5)
Only POTS I know is the "plain old telephone system."

Bill

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