Bart and bone pain

I had terrible bone pain in my lower legs and it felt like it was in my back but I believe it was more ligaments, muscles, and nerves. I feel sure that my bones in my lower leg were infected. I have been in very aggressive treatment for over a year for nuero lyme and babesia (I also tested high positive for bartonella in 2003 and had the classic bartonella rashes, burning feet, etc. I now test negative for bart but I wonder about this discussion about bartonella like organisma or BLOs.

Three months ago my LLMD added IV Clindimycin to the mix and my bone pain is gone. We decided to do this because the babesia seemed to be resistant to the IV Zithro and Mepron and Clindimycin is used as an alternatiave treatment. (Coincidentally it is also used to treat bone and tissue infections.)

The addition of this drug has resulted in the disappearance of the bone pain which is such a huge relief. I feel for you - I used to lay there and moan, especially at night when all things seem worse. Even the tissue around my ankles was swollen and hurt and it was not edema.

It is possible that you literally have an infection of the bone and tissue, either with the lyme or some other opportunistic organism.

I am sure you brought this up to your LLMD? Have other possible causes been ruled out? It is hard because it takes a while for these things to resolve during treatment.

I did a stress echo and they found nothing wrong with my heart. The taste in your mouth - my first thought would be post nasal drip, a sinus infection, or one of the drugs you are on may be causing a odd taste.

Ask someone on the site about amonia build up in the system due to die off of toxins. I don't know much about it but I think it can happen.

I hope you get some relief soon. Neurontin 600mg at night helped me a lot with the pain and getting off my feet for the night helped because it was always a little better in the morning. However, the first 4-5 months of treatment, not much of anything helped. Now it is gone.

Take care.
bcaring

I have pain in my knees that comes and goes.  (mostly comes).  It is worse when I go up and down stairs or have to stoop down to get something, or try to get out of the car.  I have exercised all my life so this is not due to being out of shape.  If I don't move,and just sit still then there isn't any pain.  I get a rash on my neck that resembles poison ivy.  This rash seems to appear on a cyclical basis about every 3-4 weeks, then that goes away.  The doc thinks this a a bart rash ( an unusual one, but he thinks it is still bart).  Also some  pretty heavy night sweats (not every night, a few times a week). 

My doc thinks I have Lyme and Bart.  I have not tested positive for either but was bitten 2 years ago in a highly endemic area of RI.  I am on Azith (500mg 1x day) and Omnicef 250 mg (2x day). 

My stomach pains have been resolved ( awful bloating, gas, gurgling, etc)

I have been treated since Sept. 08

Anyone else having these symptoms.  Sometimes I think that I really don't have either bart or lyme and am on heavy duty abx for nothing.