HEADACHES!!

Anyone else have bad headaches?  I have had this band of pressure around my head for three years and it literally left with antibiotics.  I was so thrilled  Now four months in antibiotics, they have returned.  UGH.  I am so so depressed.  Wondering if it could be the co-infection (HGE or HME whichever it is I have) causing the headache.  I haven't  treated co-infection yet.  I surely hope so. 

Springsjean,

I have been having headaches again myself. I used to have bad ones years ago but they subsided for whatever reason. Ever since I started treatment, they have come back full force and are hard to get rid of completely. I have been dealing with one now for 3 days. It kinda feels like sinuses but I'm not sure because it's in the base of the back of my head too where it is always stiff. I just know that they hurt really bad and I'm about fed up. I keep rubbing muscle cream to relax that area in the back and it does help but only for a short while. Advil upsets my stomach and has me gagging now everytime I eat. Ugh! I just fixed my stomach problems. I wish there was something else to do to ease the pain. If you figure it out, let me know, lol.

I'm so sorry you have to deal with this too because it's horrible.

 

Hello,

 

Yes, I have bad headeaches, I actually have been getting one every days for a while, but the scary part is some are just regular "bad" headeaches, and the ones few and in between are doozies, meaning I can't control them, I take percocet for them and it does nothing. I've had 3 so far this year (my last one just this past thursday) I have to go to the ER where they give me diuludin (sorry on the sp) and a few other migrane meds. It takes the headeache down to about a 4 or 3 when it was a 8.5-9. I'm actually feeling a lot better energy wise and being able to do more things so I feel the rocephin IV is really working on alot of other issues that I was having. My main concerns now are

Headeaches

Stiff Neck (which usually goes with above)

and eye twitching and and slight numbness in my bottom eye lid

I still also away most days with the numbness in my one side.

 

My doctor tested me again for Lyme and co-infections last week. I go see him today so hopefully I can finally see on paper where this is working. But I do fear at the same time that I have a co-infection causing these nasty headeaches.

 

Please make sure your doctor is checking you for co-infections which cause bad headeaches!

 

 

HTFAC

 

What type of diet are you following? And excercise as far as a routine or can just walking help?

My routine at the gym is walking a mile during lunch. 20 minutes on tread mill and then 20 minutes on bike.

I follow this with 20 minutes in hot tub and 15 minutes in the sauna.

On Saturdays, I do an hour in the pool -- laps with fins on (kills my feet though).

And I throw in an hour of yoga.

But nothing beats walking! Give it a try. Start SMALL. Before you know it you'll be up to several miles (three to five is optimum) five days a week.

springsjean,

I'm right where you are too. I can barely walk from my couch to my bed most days. I definitely know how you feel and the headaches don't help.

Thanks and I'm not meaning to be a wise guy but I've been "starting slow" for almost four years now.  Was always an avid exerciser and walker and couldn't figure out why I couldn't do it anymore.  Now that I have a diagnosis, I have tried to get back into it very slowly but simply cannot handle it, at least not yet.  I'll get there though, I'm sure of it!!!

k. sorry if i offended anyone by sharing what has worked for me. everyone has to start somewhere was what i meant. if you do opt to exercise please start slowly. my friend who had lost both kidneys and was on a ventilator recently finally received a donated kidney. she started very slowly by just walking around the backyard. i don't know if she'll work up beyond that but i admire anyone like her! she inspired me.

the meds sound promising though.

maybe check with a neuro ... i have an appt w/ one soon and i may ask about it.

again, my apologies for offending anyone here for that sharing what has worked for me. although, it is not w/o side effects for me too. . . see my other post. Again, i'm not a doctor so check with your LLMD before you start anything.