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HAS ANYONE GONE BLIND OR LOSING VISION DUE TO LYME?

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Posted 8/10/2009 2:20 PM (GMT -5)
Does anyone know of a lyme friendly eye doctor anywhere? Lyme has hit my eyes and my right eye is really bad. Has anyone else gone or going through this vision problem? Steroids will drive the lyme back to the brain. I am speaking of my case.

lymelady1024

Posted 8/10/2009 2:47 PM (GMT -5)
Hi Lymelady,

I did not/have not lost vision due to Lyme, but I did develop vision problems. I have difficulty reading things on a computer now (I need to double space everything), and I sometimes have problems where my brain filters out things it shouldn't, and doesn't filter things it should (ie. I see my nose, but not the person standing a foot in front of me).

I can't help you with a finding a lyme-literate eye doctor, unfortunately. Perhpas someone else can help there. Hopefully this is a reversible problem.
Posted 8/10/2009 2:52 PM (GMT -5)
Hi Lymelady,

Welcome to the forum!

Try emailing our long time member Ticker. She may be able to help you find a Lyme Literate eye doctor.

ko_@bellsouth.net
Posted 8/10/2009 3:06 PM (GMT -5)
I have had vision problems on and off. Sometimes it is blurry, and twice my vision has gone just to a grey color for about 10 sec then it comes back. Not sure if it is the lyme or the meds. It seemed to start after being on meds for a while. I hope you find the help you need.
Posted 8/21/2009 8:44 AM (GMT -5)
Vision problems were my first symptom. At first I thought it was because I got new glasses so I called my eye dr to have my prescription checked. It was the right one and he gave my eye drops since he thought maybe I was suffering from dry eye. Didn't work! I can't be on the computer very long or I get eye strain and headaches. Sometimes I can't focus and I haven't been able to drive at night for weeks. It is annoying but I am not too concerned at this poin tI had a thorough eye exam and the dr. said my eyes look healthy. I don't know if there is another test separate to see if Lyme has caused damage. I am also a migraine sufferer and this eye problem has set them off several times.

I don't know what the answer is but I wish you luck!
Posted 8/21/2009 5:53 PM (GMT -5)
Sophie66:

Keep a watch on your eyes. I had photophobia for years and then my eyes quit working together. My lyme Doc knew the lyme hit my eyes. I went to 3 different eye doctors and they had no clue. I was told it was stress. Not hardly!! I went to Duke and saw a neuro eye doctor and he did a CT scan. There are 4 areas around the right eye that have imflamation there. They are pushing my eye out somewhat. Scary to me. He does not believe lyme or co-infections can hit the eyes. YES THEY CAN! Now I am in a living hell because I would have to go to NY to see another lyme doc and neuro eye doc. Your regular eye doctor can not determine the seriousness of what is really going on. I am not trying to scare you, but save you time because of what I went through and I am still going through.

If you have double vision, something does not look right, heavy pressure behind the eye(s), go to a neuro doctor. Do not mention Lyme. Just say you are having neurological problems and think it is effecting your eyes. One eye doctor refused to examine me when I mentioned the word Lyme. They are scared. Stinking medical boards around this country. I am not able to go to NY now due to the unbelieveable cost. So I am angry right now. I am just warning you to be sure to go to a neuro opthamologist and get a C T scan first. Then good luck. Pray he is lyme literate. Thank you for responding to my post.

lymelady

 

Posted 8/22/2009 9:51 AM (GMT -5)
I see a neurologist for migraines and I have an appt. in Sept. The hospital I was in for treatment and my dr. sent him all the info on me. His office called and he wants me to see a rheumotologist ( I know that is not spelled right!). I am trying to be patient and see how the antibiotics work. Thanks for the info. I will definitely keep a watch on this!
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