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Lyme Disease
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rgarvey70
New Member
Joined : Oct 2009
Posts : 2
Posted 10/19/2009 7:19 AM (GMT -5)
Please help if you know one! Thank you.
Ryan
Jeminij
Veteran Member
Joined : Dec 2005
Posts : 1336
Posted 10/19/2009 12:04 PM (GMT -5)
Yes. Dr. D. He works in Boston on Wednesday's right off of Storrow Drive. E-mail me and I can get you all his info. He has been my Dr. and actually the only one who diagnosed me years ago. He is very knowledgable and very much a lyme specialist.
pcpc
Regular Member
Joined : Feb 2009
Posts : 214
Posted 10/19/2009 1:06 PM (GMT -5)
I would recommend Dr H (newton)- she is an excellent LLMD although I also use Dr J (SC) as I am a complicated case- but Dr J works with him and is likely to become a satellite center for his research. Email me if you like for her phone number
Channing how
New Member
Joined : Aug 2009
Posts : 2
Posted 11/1/2009 8:18 PM (GMT -5)
I was just about
to ask my LLMD if I should go see DR D in Boston. Does he have a long wait ?? Does he take normal insurance?/
CajunGrl
Veteran Member
Joined : Mar 2009
Posts : 4717
Posted 11/1/2009 11:09 PM (GMT -5)
Channing how,
Welcome to the forum!
pcpc
Regular Member
Joined : Feb 2009
Posts : 214
Posted 11/2/2009 9:36 AM (GMT -5)
I would not see him! I know many bad outcomes from him. email me and I can help you with referalls if you are in the Boston area.
Dowa
Veteran Member
Joined : Sep 2008
Posts : 1120
Posted 11/2/2009 1:27 PM (GMT -5)
It is my understanding that Dr. D is one of the best on the East Coast. D
pcpc
Regular Member
Joined : Feb 2009
Posts : 214
Posted 11/2/2009 1:38 PM (GMT -5)
Many think so. I am not a fan- ask on the board I think there is someone on this forum that had a problem with him. I'm sorry I wish I had better news- Boston is not a good place for Lyme treatment in my opinion and I live here and practice medicine here!
The patients that I have personally had that used him never got better, were on constant antibiotics for years, and I think were mismanaged. Sorry to be so
openly blunt. Please let me know if you find otherwise, I hope I am proved wrong- we need more good docs in this Lyme infestd state.
lymeparent
New Member
Joined : Nov 2009
Posts : 1
Posted 11/7/2009 9:40 PM (GMT -5)
How can i get that info on Dr. H in Newton? I have been waiting to hear back from Dr. D for over a month, since getting my son's referral info to him?
Kristiana
Regular Member
Joined : Jun 2009
Posts : 22
Posted 11/8/2009 12:52 AM (GMT -5)
Sorry, but I would NEVER NEVER suggest going to Dr. D. in Boston or his other address in Falmouth on the Cape!!!!! He see's you for 2 minutes total and says he cannot understand the brain scans too well, yet he will order one. He told me that "what you have now, can never ever get ANY worse than it is right now." Well, being on his favorite antibiotic -Tetracycline - for a year, my brain scan went from 2 areas affected in my brain, to almost all of my brain affected just 8 months later. And STILL he did not put me on IV antibiotics. His bedside manner is quite nice but as he said, this will be a turtle's pace." I was disappointed that I wasted a year there. I had to beg for IV antibiotics and he finally said ok. But he put me on it and then didn't prescribe the med that ordinarily goes with it (that prevents your gallbladder from collapsing). So my gallbladder did collapse and and weeks later, his secretary called and told me to remove the PICC line, go off the Tetracycline, see you in a month, and oh yeah, don't call back. Someone in my support group right now, see's him, and just got Bells Palsy and she is STILL waiting to hear back from him. It's been 2 months and no reply.
I now see Dr. J. (S.C.) and it is like night and day! I was tired of hearing from the patients in Dr. D's waiting room that they had been seeing him for 10 years and still not any better than the first day they saw him! Yikes! But Dr. J. (S.C.) is fantastic. Another person that might be closer is Dr. F. at Columbia's school in New York City. I don't know what his waiting list is, but he is a psychiatrist who started the Tick research there in 2005. He is highly intelligent and knows about
brain scans and which areas of the brain need to be targeted to stop the inflammation in there. You can email me. I have never seen Dr. F. in NYC but read a LOT about
him on the internet and my primary care doctor called and talked to him. They have a waiting list but not nearly as long as Dr. J's waiting list, which is about
6 months now. I saw Dr. J. last Thursday and he has an overwhelming 200 new patients each month - that's why the waiting list is so long for him.
Feel free to email me: KristianaS2003@yahoo.com
Kristiana
Jeminij
Veteran Member
Joined : Dec 2005
Posts : 1336
Posted 11/8/2009 11:07 AM (GMT -5)
Dr. D saved my life. He is one of the best and without him I would never have gotten well. I can't say enough good things about
going to see him and when I read others saying no, I feel like you could be missing out on great treatment. I have also referred 3 close friends to him for treatment and they are all recovered and doing very well. Maybe some have a different opinion, but do not let that stop you from going to see him and see what he can do for you. He is extremely knowledgeable as well as so kind. He has about
a 3 months wait and yes, he does take normal insurance which is great. You don't have to pay out of pocket.
I did not take tetrycycline. It didn't sit well with me so he will work with you for the best combo. I did Biaxin/plaq and it worked well for me. It still took time, but it worked. My meetings with him also lasted for over an hour. I guess I have a different experience. If you ask him to do any test he will order it. I always request a new Western Blot just to see any difference. He will do whatever he can to help and that is why I liked having him as my doctor.
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