bone pain

May I ask, do you have Lyme disease? Have you been diagnosed with it, and if so, how long ago? What is your treatment protocol at this time?

If you have Lyme disease, yes, lots of people have bone pain in their legs, arms and many other parts of their bodies. Does your pain feel like arthritis pain? This is quite common for those of us who have Lyme disease.

Sorry to hear of your suffering. Tell us a little more about yourself and I'm sure others will come along and offer their input as well.

Gary

I think IVIG can cause bone pain...you might ask your doctor or pharmacist if this could be a side-effect...

Also, I've experienced bone pain from osteoporosis - inactivity caused by being ill, malabsorption from Lyme, and some medications used to treat autoimmune diseases (esp. Prednisone) can cause osteoporosis. You might want to talk to your doctor about a bone density test (DEXA scan). The thing that helped with the bone pain from osteoporosis for me was getting a prescription for Miacalcin Nasal (osteoporosis medication) and taking enough calcium and vitamin D.

I hope this helps...take care,

For me, the bone pain felt like a deep pressing ache...but yeah, it can be hard to describe, especially to someone who's never experienced it...

Take care,

i had serious attack on my knee and shoulder, that restricted movement of both those joints, but that time i was not even diagonsed with lyme.

since i started lyme treatment my pain has only got better, shoulder never got attacked, but knee pain persists, however, with 15+ days of knee massage and physical therapy, i am able to sit/walk/climb steps without difficulty.
jogging and running is still out of the question.

now i am off medicines, and i seem to have knee pain back. looks like i need to get back on medicines.
to describe my bone pain, it was just massive inflammation around knee and it'd hurt to even move the knee a little bit. for the longest time i couldn't even figure out where the pain was coming from, until i pressed along all parts and found what hurt the most. the pain is all comprehensive, sometimes small joints in knee hurt.

Hi Dawn,

Oh man - I hear you. I'm sorry you are going through this. It very well sounds like Lyme - especially if you were not treated correctly in 2011. I was not treated correctly and it shows. Also, hypothyroidism and adrenal problems are common with lyme as well. 3 weeks of doxycycline will not be enough. I would strongly recommend you read our " New to Lyme, Start here" thread at the top of the Lyme page. I n addition I would recommend seeking out an IlADS trained dr which you can do on this site. Many of these drs are underground so we ask not to post names. You can email me or put a thread out "Looking for LLMD in _____ ___" Best of luck to you - this is a good site for all kinds of symptom and treatment advice - conventional and alternative.

It does get better!

Thank you. I have found and IlADS dr. just waiting for this igenex test to come back...seems like forever.

My pain is so intense...I can see why people want to end their life.
I do appreciate you saying it gets better. I really hope so.

People have no idea how painful this is.

The bone pain is impossible to describe unless you've experienced it.

My feet felt as if someone had smashed every bone in them and then put the bones back together in the wrong order............if that makes sense.

Painkillers at that point were useless,I could have just as well have been swallowing tictacs.

The only thing that really worked for me was Boswellia and Turmeric, 3 capsules 3 times a day.

The pain does get better with treatment but it takes a very long time.

Tickled

Ok so I got the Igenex test back and I'm positive for Lyme, Babesios and bartonella. Can anyone tell me if this protocol worked for you? The lyme dr. put me on Dr. Zhang's pills
Arthral EZ
Allicin
chlorophyll
circulation P
Artesumate
Plus, A-Inflamm drops - I think these help alot.
And she put me on an oral antibiotic.
I'm still taking Ibuprophen, vicodin and muscle relaxers to get thru the night with many sleepless nights.

Let me know if anyone of you have been treated with these and the results.
I still have lots of pain. I have noticed a few little (ever so slight) differences...

I have had Lyme since 1996. I've dealt with pain in my tibias off and on (more on than off) since that time. It has spread to my arms and facial bones in the last couple of years. The lyme, otherwise, has stayed at a very low level and generallly "behaved" itself, but the bone pain never seems to go away. If someone touches my tibias, I scream, because it HURTS! It seems like if you tell a physician about the pain and not to touch the area, they seem to have a compulsion to touch it, and not gently! I've never found anything but pain medication to deal with it. NSAIDS and other OTC pain medications are rather like shooting an elephant with a BB gun. I can go months without pain in my tibias, too. During those times, I do not take pain meds.

Hi PennyDuff!
Glad you found the forum. It's pretty late tonight so I would expect a forum moderator to come along tomorrow to officially welcome you and provide some important info. They are a great resource.

But I wanted to say hi. This is an old thread - you may not have noticed the date. But it's an interesting topic. I was always confused by the term "bone pain" because I didn't understand how you could feel pain in your bone.... UNTIL I DID! Wow. that is pain... I get these pains in my shins mostly, sometimes my arms. It is very difficult to describe but it is like a "catch my breath/bring me to my knees" kind of pain. For now, it's intermittent so I'm grateful.

I get it more in my right shin and that also happens to be where I have a very very strange lesion/rash looking thing. It is typically oval-shaped and I get them on my lower back right above my butt and just below my bra line on my back and I have one on my abdomen and just below my knee. But on my shin where I get the bone pain I have a weird large splotchy splotch like it was a paint splatter. So strange but I've always wondered if it's associated w/ the bone pain. My LLMD & I think the lesions are bart and they are now fading since I started vanco this month.

I don't take anything for the pain because I can't tolerate the side effects that come w/ pain killers but it's also not a constant pain like the joint pain. Hope you find some relief.

But I didn't realize it was common - interesting to know.

-p

Pirouette. You have lesions on your shins? I also have spots on my skin almost directly in the middle of my shin it is about a inch long and about quarter Inc wide and oval looking. It is sometimes red and other days is faded to almost skin color. Is this how yours are? I have wondered if it was due to the Bartonella as that is the side I have foot pain and shin pain on.

Nick

Long bone pain, especially in the shins and forearms is caused by bartonella. The bacteria infect bone marrow as well as endothelial tissues.

Bone pain was one of K's more significant symptoms which resolved with bartonella treatment. She also had skull pain.