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Posted 7/27/2010 4:12 PM (GMT -5)
After my wifes symptoms kept getting more and more like mine, we decided to have her tested as well. Got the results back today and she's got it too cry   We are 35 and 32 respectively with a 4 year old son. We are having a hard time imagining how we are going to both going to deal with this at the same time. Not only that, now we must get our son tested. Neither one of us remember getting bit, no rash, nothing. Doc says mine is a old infection, so it sounds like sexual transmission to me.  We have only camped twice and both times in the last 8 months here in Florida.  It's just so unbelievable that Lyme is so under the radar. When are they gonna wake up.  I think I've Dxed 2 people alone since I was diagnosed, Including my mom who supposedly has Lupus. We'll see, just needed to vent a little. Bye for now....Jeff
Posted 7/27/2010 4:19 PM (GMT -5)
HI InfectedinFL!
I am so sorry to hear that your wife just got dxed, & that your 4 yr old may also have it!!! I agree that these tick-born infections are soooo under-recognized!! I have talked with quite a few people in my little home town of 1300 people that have LD -- even if there "doctor" never dxed it!!!

Best of luck!! Maybe you can come up with a new saying - "the family that detoxes together, .......???
Posted 7/27/2010 6:12 PM (GMT -5)
Hello Jeff,
So sorry to hear about your wife! Yes that would be difficult having both of you symptomatic. My husbands had multiple ticks bites but is asymptomatic and hasn't been tested yet (we have no medical coverage for him since I stopped working 2 years ago). We have a son that will turn 5 in Aug. I had an Quantitative EEG done that showed chronic brain inflammation from Lyme for 10 -20 years. So I assume my son has it. He's been asymptomatic so far thank God! I'm doing everything in my power to make sure his immune system is in great shape!!! We don't know yet what for sure triggers Lyme symptoms to start. I had it at least 8 years with no obvious symptoms, no seen bites, rash, etc.

Anyway, keep in mind that many reports are out now including mosquitoes and sand flies as Lyme vectors. And mostly on the east coast.

I see an Acupuncturist M.D. that does BioSet which is a type of electrol-dermal testing. This is probably the only treatment that I have had in the last 2 years that I wish everyone of us could do. If your insurance company covers acupuncture visits, then it would cover this. Mine doesn't unfortunately. Check out ImmuneMatrix.com website and it explains the process.

My prayers are with you and your family!!
Lisa
Posted 7/27/2010 7:27 PM (GMT -5)
I was actually on the california lyme disease site today where they call lyme disease a std - sexually transmitted disease. I keep researching this as I went undiagnosed at least 5 years and am battling it horribly but my husband is showing many signs including sudden severe anxiety, headaches, blurry vision. Very very strange.
Posted 7/27/2010 7:38 PM (GMT -5)
It's only a matter of time til everyone will realize it's an STD just like it's cousin Syphilis.

I've been wondering if my husband, who's been a hunter for 30 years with tick bites and no symptoms, is planning a big role in me not getting better faster?? We've been using condoms for that reason, but we hate it and sometimes say forget it!

My friend that had Lyme for 10 years before diagnosis, her husband who never goes outside is either in school or at the office got Lyme. They are convinced it was sexually transmitted. Thankfully, he started treatment ASAP and didn't have to be on it long. She's on her 5th year of treatment and dealing mostly with Babesia symptoms and taking Artemisia.

Your husband needs to start treatment fast!!
Good luck
Posted 7/28/2010 8:00 AM (GMT -5)
Hey jeff- Been there, doing that.... and I will be honest and say it is not fun having your whole family infected.
But the really good news for you is that if your DS has it, he will be able to get treated easily. Not only has he not had it that long, kids seem to bounce back so much faster and better than us "elderly." LOL

My DH most likely has had Lyme since the 70's. We have been together for almost 20 years and married 17. I most likely have had it as long as that. My two kids have it congenitally.

DH is very sick from it, has been declared Disabled through Social Security (you know its bad when even they admit it.) I am holding my own, good days bad days. DS is 14 and he is having a rough time. It gets worse during the school year when he can't sleep as much as he needs and has additional stress.

But-- on the good news side, by DD is almost 12. She has been off abx for 4 months, and been symptom free for 8 months. She is back to being her normal "tween" self.

DH was "officially' dx'd in 2006 and finally found an LLMD in 2007. The kids and I were dx'd in 2008 and started treatment immediately.

Its not easy, but it can be done and it can be overcome. The hardest parts are when we get into "pee-ing" contests on symptoms. "My back hurts, well mine hurts worse that yours. How swollen is your knee today? Oh look at mine... blah blah......"
The other hard part is that b/c I am the one keeping it all together, my family forgets that *I* have Lyme too- and b/c I don't take care of myself like I should, it allows them to discount that I am sick as well.

Again- on the positive side-- my family has been through hell and back over the last 7 years when DH first got sick. There is nothing that can tear us apart. In many ways, Lyme has made my family stronger. We're pretty tight, especially under the circumstances.

Good luck to you. I hope that your family heals quickly.
Posted 7/28/2010 10:58 AM (GMT -5)
Drag..... I still think my Mother died of LYME INDUCED leukemia. Maybe she got it from my Dad but I really can't help also thinking that
there is something else we are all missing. too many people have lyme and no memory of a bite.

So much mystery with the testing??? even this CD57 thing. how can they test you for anything if you are on prednisone or cortizone?

I think my whole family has "it" . But maybe this EBV thing is another imitator of the imitator? My symptoms are almost identical to my Dad's. I really believe he has suffered more than me because he never took pain meds and just kept drinking beer.

I have a friend who is completely overwhelmed with anxiety and very very sick. She tested positive for lyme, her CD57 was in the twenties and her Igenex coinfection panel came back CLEAN.

I was stunned that this girl didn't have at least bartonella. She did have very thick blood and started heparin shots. This is someone who has ticks all over her area and has been pulling them off her whole life.

Is it possible that after so long these coinfections get disguised.??? Or can lyme alone make people just as sick as those with 3 coinfectins. Maybe it is depending on having it for very long time.

I don't trust any of the testing and I am really wondering if there isn't an enviornmental thing happening.
Posted 7/28/2010 11:11 AM (GMT -5)
I can not imagine how life would be if my husband had Lyme too. He takes good care of me and without his help I would fall apart completely.

I will pray for you and your family.

Regards,
Posted 7/28/2010 2:18 PM (GMT -5)
I pray it's not sexually transmitted! I've talked to my hubby about this. He's not overly concerned at this point, not enough to insist on protected sex. We are both in our fifties, so children aren't in the future. I am concerned about this possibility. Darn.
Posted 7/28/2010 3:24 PM (GMT -5)
Bucci,
Many of us infected with Lyme & company also are infected with EBV. My EBV titers back in the 80's were so high, that my doc at the time told me I would never be able to hold a full time job again. I fought to keep going as long as I could possibly fight, but was only able to keep working another two years.

I believe that the weaknesses (illnesses,diseases & conditions) that our bodies have, and the amount of stress we are living with at the time of exposure to these TBI's, determines how our bodies respond. Some get sick, some don't. Some get extremely ill, others - like me- find it to be insidious - slowly taking over our entire lives. Although this is just my opinion, based on all of my research type reading.
Posted 7/28/2010 4:35 PM (GMT -5)
Wow you just gave me an idea, perhaps my relentless headaches are from the EBV. i'm gonna look into this. more researching. . . . Can't hurt right?
Posted 7/28/2010 5:30 PM (GMT -5)
Bucci, there absolutely is an environmental factor involved with TBI's. Read the book - The Six Modern Plagues And How We've Caused Them. It's really really good. A huge eye opener. I found it at the library one day. Also, my friends mom that lived on Long Island most of her adult life died last year from severe peripheral neuropathy as a result of untreated lifelong Lyme disease. And now there's research being done on Lyme related Alzheimer's. Watch the "Under Our Skin" film if you haven't seen it yet.

Married, my heart and prayers go out to you and your family. I hope you have lots of friends and extended family that help you guys out with the house and other daily things!!

My IGenex co-infection panel was all negative too. But I have Bart, Babs and Erhlicia. So don't rely on the tests. The only close to 100% testing I've had done is electro-dermal testing (EDT). Every living organism has a electromagnetic signature (like DNA). EDT picks up and reads these signatures if they're in your body. It can also put them in order according to what organisms are causing the most problems at that particular time. It's similar to how Rife works, except with Rife you guess at what frequencies to use. My EDT was able to tell me what tick species I had been bitten by and what different strains of the TBI's I have. It's pretty cool to say the least.

And like Traveler said, I've tested positive to EBV, CMV, HSV Parvo, Crypto, tape worms, round worms, gluten sensitivity, and many more I'm forgetting.
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