Posted 1/6/2011 7:35 PM (GMT -5)
Reading and learning about this disease is so new for me. I just want to say thank you thus far for everyone's responses. I also want to add that I am so sorry for those of you and your loved ones who had searched for years with ravaged bodies and minds to be turned away until finally discovering the lyme diagnosis. We did not know the numerous symptoms were lyme...we were not actively asking doctor after doctor "whats wrong" or "is it lyme". We didn't have a clue. I only recently put the connections of symptoms together and asked hubby to ask the cardiac doc for a lyme test--and it came positive. Had it come negative, we would not have had a clue to continue pursuing it....we are both so ignorant to the disease. Thus, I wrote in a previous post about getting the blood test diagnosis, not even knowing that it often comes back a false negative. If I offended anyone, I am so sincerely sorry. Please attribute it to my just know knowing. I can only state that, with the positive blood test for lyme news that we received just a week ago before the new year, I was both upset and relieved all at the same time that there was a diagnosis. Were we lucky it came back positive after 1 test? Maybe. Frankly, if the test was negative, we would have gone on in our ignorance both hubby and I, and not given it a second thought until, maybe, the myriad of symptoms had gotten much worse and harder to bear as it has been for some of you here....and let me add that the mental/emotional behavior of my husband has been the most erratic and hard to comprehend...it was easier to piece together the physical symptoms, including heart issues, dental issues, etc. I am thankful that the first test came back positive because without that, we would have wandered aimlessly for much longer. It is a scary insidious disease I am learning fast. Again, please know that I'm just learning about it all....if I speak out of turn, it is just because I do not know. Thank you all. All who have responded to me thus far have made a huge contribution to my understanding of the disease and I am so grateful to have found this forum.