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Abx.taken. Retesting is Negative

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Posted 3/2/2011 11:27 AM (GMT -5)
I'm glad I've read a lot about Lyme.

I called the office for the retesting after the completion of doxy  l l/2 months ago.  She says I'm neg and said, "Is that Ok"?    I commented, no!  I was sick this wkend.   I want you to have the Dr. call me.

My question to the Dr. will be about what she plans to do with me if I continue to exhibit sickness. 

I am positive this is the aftermath of the storm.  It's been in my system some time as most of us,right?

Well, anywho, part of me wanted the results to be positive yet I certainly did not want to picc line like she suggested if it were positive.

Think positive!  My motto for today.  I'm gonna try not to dwell on this! 

I asked my hubby to read ch.36 of "Cure Unknown" so he understand the the spirochettes hide in the body etc....

Then I mentioned my neg results.  He wondered why I didn't tell him earlier.  I said, "I wanted you to understand that tests are not always accurate, but in his eyes I think he's so delighted!  

Ok, look, I don't want this just like everyone else.  But I'm still getting sick,  so NO, I am not excited about the results.  I believe it may be possible it was in the inactive state when testing was done one wk. ago.

Does this all make sense to you all?   Yes, I'm new, but I've read enough to understand that Lab Corp and Quest (whom I used twice) are not the most reliable testing facilities.

Well, I choose to have a good day today.  I hope you all have a sunny day!

As always, comments are appreciated.  I learn so much everyday about this horrible illness!

HH

yeah

 

Posted 3/2/2011 1:51 PM (GMT -5)
Hi HH!
You are most certainly right - the type of test that is usually used to detect Lyme is far from being ideal!! I'm sorry hubby doesn't understand. Unfortunately, you are not alone with family members not understanding either!

Please don't spend much time with a doc that won't treat when needed - it's not worth the wait or the frustration & stress that it will cause you!! I would like to encourage you to find a Lyme Literate doc right away, so that you can get back into treatment.

Also, keep on reading about these infections!!! The more you know, the better equipped you will be to ensure you are receiving the treatments you need!

Keep up the good work!! And have a very positive day!!
Trav
Posted 3/2/2011 4:30 PM (GMT -5)
What was negative? an elisa (worthless) or western blot (if so what if any bands)? There is so much more meaning than "negative" when it comes to lyme which is why CDC (worthless) says it should be a clinical diagnosis. I'm gonna try and find the excellent article I read yesterday online about why and how lyme hides in our system. If I do I will post it.
Posted 3/2/2011 4:35 PM (GMT -5)
http://www.lymediseaseresource.com/wordpress/dr-burgdorfer-explains-existence-of-chronic-lyme-disease-and-similarity-to-syphilis/

This is the article. Someone else posted it earlier. It is a good but scarey article and just mentions how hard it is to detect.
Posted 3/2/2011 5:00 PM (GMT -5)
Thanks. I have yet to see the results. They just told me over the phone.

Copied above, thx.

HH
Posted 3/2/2011 11:54 PM (GMT -5)
My doctor told me that antibiotics can interfere with Lyme test results.
Posted 3/3/2011 5:20 PM (GMT -5)
Thanks pokerface.

Have a good one.

HH
Posted 3/5/2011 11:13 AM (GMT -5)
Horsehelper, It is a waste of time to see any doctor that does not specialize in lyme disease. The testing facilities are not good enough. Antibiotics can interfere with testing but it is more likely that testing is not good. Antibiotics helped me show many markers to an almost positive and that was close enough for me. Go and see a lyme literate doctor. I am on my second round of I.V. antibiotics and feeling better with each passing week. I never got a CDC positive and it didn't matter because I was very ill and needed treatment. I hope this test result doesn't discourage you. Good Luck to you.
Posted 3/5/2011 11:52 AM (GMT -5)
Donjoe is right. I would not spend any money on any test for lyme at this point. (he didn't say THAT but its what I believe) I am going to look for your email address I lose things i hope i have it somewhere
Posted 3/6/2011 4:44 PM (GMT -5)
Thx. I believe you are all correct. The book I've read says the same thing.

Who cares what a test says, My next question to the Dr., what are you going to do if I continue to get ill?

No, Donjoe, the test result does nothing to my thoughts about this. If I feel sick, it's the symptoms that come with the untreated Lyme for months/years. We know, also, Lyme is a "hider" in our tissues, right?

I am glad I have support here! Seems like Drs. could give a hoot, only LLMD.

I must say, though, I'm not near as ill before the antibiotics, believe me! Yes, my days are bad at times, but before the abx I was very very sick for weeks! I think I will encounter the shootings pains of the nerves as diasgnosed by Dr. (neuropathy). I've had this for years.

When my headaches intensify with neck pain and I know I'm going to have a set back, these are my warnings. The next day I plan accordingly. Boy, I sure cannot stand bright light and noise. I get very jumpy when babies scream in restaurants or peoAtalk loudly, or a cell goes off in a store.

One day at a time is what my motto is.


Thanks for everyone's input!

HH
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