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susieq64
Regular Member
Joined : Oct 2010
Posts : 84
Posted 3/10/2011 3:39 PM (GMT -5)
I have been prescribed Factive for Bartonella, which I will take along with the IV Invanz and oral Alinia, anyone been on it? have anything good or bad to say? I am a little nervous of the side effects that can occur.
Thanks
Susie
bucci
Veteran Member
Joined : May 2006
Posts : 1477
Posted 3/11/2011 10:35 AM (GMT -5)
Hey suzi,
Wow, you are really moving right along with this new doc.
I was given leviquan script
for bartonella but never cashed it because of $$$
but it it same family of fluroquinolones as Factive.
I wonder what is difference? but they all have the same warnings.....
Cipro is in same family and people are given it all the time for urinary track infection.
Your doctor seems to have specific agenda here. I think the only way to look at all this treatment
is it really is like chemo. side effects of all kinds but you gotta kill this stuff.
Is this IV or pill? How are you feeling so far with the treatments?
I don't know what makes the difference in choice between the cipro, levaquan or factive but they all
give the same side effects.
did your doctor say anything about
chlamidial pneumonia of hhpv6 or erchilles?
do you feel depressed in the lungs?
I was wondering if your guy did a stool test for parasites. Isn't he an infectious disease doc?
I have good feeling about
this doc for you. I know you been through a lot already.
susieq64
Regular Member
Joined : Oct 2010
Posts : 84
Posted 3/11/2011 11:06 AM (GMT -5)
Hi Bucci:
He is an infectious disease Dr, who has been a LLMD for over 25 years. I am on Alinia for the cysts orally and he said that would take care of any parasites or C Diff.
The factive is oral and to be taken 5 days on 2 days off for the Bart.
I did have C pneumonia when originally tested.
I am worried about
the side effects, have filled the script
but not started it yet.
I am feeling more fatigue than ever and my dizziness is through the roof. I have to get a MRI of my brain on Monday as he noticed some neuro problems when checking my eyes last week.
He also prescribed a drug called DDAVP (which I have not filled yet) something to do with pituitary function.
Susie
bucci
Veteran Member
Joined : May 2006
Posts : 1477
Posted 3/11/2011 11:11 PM (GMT -5)
Thanks for the update, Suzi. I have really good feeling about
this doctor for you. I feel like it is specifically targeted with a different angle and covering the bases.
I know for bartonella the fludroquinilones is what many are giving.
the pituitary function is also a big thing for all of us. I feel it is what has most damage for me and everything else is the trickle down effect from there....... all then endocrine problems. and on and on right down to the unbearable pain.
I am not sure but I have to look up this DDAVP. Maybe once that drug starts to work the pituitary the dizziness will be better and you will have more strength all around (even if it seems like a little) the stronger the pituitary the better chance we all have. So then the bartonella treatment you will be able to handle.
I have to keep referring back to all of the super antibiotics my Mom was given after going down the tubes from chemo. They expect infectious disease to set in . After the chemo she was automatically turned over to the infectious disease doctor and they use all this heavy abx. If they can come back from it after chemo we have got to be able to. But again I really believe the stronger pituitary and rest of our brain function the better shot at taking it on.
Is the MRI that other kind I think it is called a floating MRI? something like that I read about
that was more tell tale than an ordinary MRI. I think I have the name wrong bt this doc sounds like on the ball.
I know you really are right at the edge with this,Suzi. So hang in there. Hit the floor with your knees in the morning. It's my new system for making it through another day.
love
Bucci
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