Posted 3/17/2011 8:39 PM (GMT -5)
New here, reading the "New to Lyme" posts has given my a lot of info and question for me and my family Dr. to find answers to. I have been dx with possible MS and Central Nervous System Disorder for the past 8 years. Have had a slow progression of sensory symptoms, many lesions in my brain on 5 MRI's with no confirmed dx of MS, Evoke potentials negative, EEG's negative even though I have reactive body reflexes or spasms with sound, touch and movement around me, have not driven for 2 years because of these movments, other symptoms on the list for lyme. Have had the same neurologist for 8 years and just saw another one who ordered a lot of lab work and tests. What showed up on what I think is my first lyme test, B. burgdorferi EIA Reactive, B. Burgdorferi IgG Western blot and IgM Western blot Non-Reative, lab asked for another test 4 weeks, this one has shown the same and they have asked for another test in 4 weeks. That would be next week. Seems they tested for the same thing, not a new test. Does this mean I probably have lyme? Neurologist was not sure why I showed Reactive on one and not the others in the same test, directed my Dr. for me to see a Infectious Disease Specialist, a Rheumatologist for the arthritis info found on scan and MRI, a General Internist, and assesed in the Neuropsychiatric Clinic at local hospital. My Dr. and I are not sure why he thought I should be investigated by the Clinic. I'll wait on looking into that one. Blood work also showed B12 down, RBC flagged, glucose and cholesterol levels elevated. Not sure where to go from here. I live in B.C. Canada. Thanks for any help, Pinda