achievinggrace said...
MysteryLyme said...
And if you disagree... go ahead and fill me in with some actual facts and studies concerning long term antibiotics
It is continually stated that research has not proven long term antibiotics to be beneficial in treating Lyme Disease. Well, it hasn't been dis-proven, either (to my knowledge, which is puny).
Doing research on long term antibiotic treatment would be pretty much useless and a waste of research funds, in my opinion. There are several known strains of the Borrelia bacteria (how many do we not know?). That, with the myriad combinations of co-infections and other diseases encouraged by a long-held infection, how would researchers get a study population that was exactly the same? Add to that the vagaries of individual response to antibiotic treatment and differing lengths of infection, and you have an impossible study. Just think of it -- take 100 lyme patients and administer the same dose of doxycycline for 6 months or more, regardless of patient reaction, what would you be left with? I'm thinking some cured, some functional but bothered by symptoms, some pretty sick and some who had to leave the study to be hospitalized with bad herx reaction. And then how would the researchers objectively evaluate whether or not the treatment has been successful? The tests are quite inaccurate and the bacteria undetectable, able to hide throughout the body in several different forms.
Most people who are advocating the use of long-term anti-biotics are the doctors who have had success in treating patients this way and the patients themselves. They have seen it work. So we do have scientific proof but it is empirical proof, not controlled test study proof. MysteryLyme, you have found a shorter treatment protocol to be successful (I hope you do realize that 28 day of abx treatment
is considered long-term by many doctors), so you are in favor of short course antibiotics. Are you not basing your opinion on empirical knowledge just as the person who was cured with a long-term antibiotic?
As yazzer points out, it needs to be recognized by the medical community that it is a disease that warrants treatment by a specialist. And the insurance companies need to step up to their responsibilities and pay for that treatment. But that isn't going to happen until the CDC updates their position.
And they have already found that to be tricky business. What if they approve long-term antibiotic treatment for Lyme? Does that mean that everyone who gets a tick bite is going to demand a year's worth of abx? You know some will!
I feel that everyone needs to get off their soapboxes (I say from the top of my very own crate of Dove!) and stop insisting that one particular treatment is right and any other treatment is wrong. There needs to be an overall humility in the face of this awful disease. There is so much that is not known about
Lyme Disease -- we none of us have a leg to stand on, let alone a soapbox.
We have all seen that there are some very questionable treatments out there, offered by some rather questionable people to desperate patients. There will always be snake oil salesmen peddling their cure-alls. It's a shame, but it's a worse shame if that leads to patients being denied a treatment that works for them.
Even if that treatment is long-term antibiotics. Tuberculosis, leprosy, acne, Whipples disease, Syphilis, malaria --what else?-- are all treated with long-term antibiotics. Why not Lyme, if that works for the individual? Why is that worse than cutting people loose still suffering from symptoms?
So many doctors seem to be content with administering inadequate treatment, or refusing treatment altogether. They are too often refusing to learn about
Lyme disease. Why the resistance? If they don't know, why not recognize it (again, show some humility?), and refer the patient to someone who does know?
Why is so much energy being wasted on controversy? Instead of wrangling about
which treatment is "the one" shouldn't the energy be put into finding a cure, to identifying the best treatment protocols, and educating doctors and the public?
Oh my, someone hit my rant button, sorry!Very well stated achievinggrace!!
![yeah](/community/emoticons/yeah.gif)
you rock!!