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Messing with your mind..

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Lyme Disease
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Posted 11/18/2011 8:04 AM (GMT -5)
I thought I would try to keep this light even though it is serious business. Lyme can affect our brains and central nervous systems in many ways. Theres all the brain fog, inability to concentrate and more common things but I thought we might talk about the more unusual.

                    I have had some strange things happen. 1) for some reason driving would trigger my eyes to close and I couldn't reopen them! 2) This one was kinda nice, for a while when I would have a thought I would see the thought. If I was working on something I would see images in my head of the topic. My brain never worked that way  before I always had trouble drawing because I couldn't visualize an image..

            Well how about you? Hows Lyme messing with your mind?

Posted 11/18/2011 10:37 AM (GMT -5)
it increased all aspects of my mental function over time. It was so hard to think when I was at my worst that I would force myself do those things anyway all the while loaded up on painkillers and other "herbs". After being able to function in the heaviest of fog, I gained an almost supernatural mental ability. I can read super fast now, think abstractly, and solve math problems quickly. Overall, lyme has definitely made me smarter. I think it just teaches us how to use our brains even when they are impaired.

I get those images in my head too. I can imagine very detailed scenarios in my mind and replay it and watch it from other perspectives. It's pretty neat, but I'm sure other people do this too.
Posted 11/18/2011 1:01 PM (GMT -5)
My brain is quite literally still healing, but I did just recently regain access to my memories!! That was huge!! I was in tears most of the two days when I finally got the access back!!! All of the memories of when I was growing up!!! How wonderful it was to finally know that they weren't lost for good!

My short term memory has returned somewhat as well - of course we can all see how helpful something like that would be!!!! tongue

I was -at one point- not able to follow instructions (written or verbal), so that ability is pretty awesome to have back as well as many others that most people take for granted. I know I did before I lost it all!

What's truly amazing is that the brain can recover the way that it does!

I believe that as we correct the issues going on in our bodies (by detoxing, and changing our diets, and being much more aware of what we put into our bodies) that we are enabling our brains to function much better, rather than it being because we had/have Lyme. But that's just my 2ยข. smilewinkgrin
Posted 11/18/2011 1:56 PM (GMT -5)
Traveler, that must have been terrible losing all those memories.. My short term memory has always been terrible, however the lyme has definitely made it more challenging. I am really lucky in a way that I developed Bells Palsy, If I hadn't I would have kept listening to my idiot Doc and I could have lost a lot more from the meningitis..
Posted 11/18/2011 2:58 PM (GMT -5)
haha...these posts never cease to amaze me...since my infection i had noticed that when i was trying to explain something...i would get pictures and could relate it in laymens...but i thought it was because i have had trouble in the past expressing myself and getting people to understand where i was coming from...so i thought i jus adopted a new way to communicate...lol.....i talk in picture allll the time....
Posted 11/18/2011 7:36 PM (GMT -5)
Humm,the closing y eyes while driving has definitely happened and not as a good thing. more like a dumb thing I couldn't keep from doing. scairy

the reading is like semi blur reading and then like spot reading here and there.

i do sadukos everyday and some could take the whole day and night and many never finished.

I bet I finish one in 10

tonight I was in supermarket too long.. I came out into this huge parking lot and mind went blank.

It was freezing and I couldn't keep pushing the cart up and down so I had to leave it and walk around.

The car was parked in a section that I was ablosutely sure I had not even been over there.

Last week I was lookin all over the place for my teeth including the garbage because I was positive ..no way
did I put them in the cup in the bathroom.

After an hour of tearing up everything from the car to the house..... I looked in the bathroom and there they were....
in the cup.

If you think I have told ANYONE else that one...........no way. It was just too over the top to share with the few people I do talk to.
Posted 11/18/2011 9:45 PM (GMT -5)
hahah i got one....i spent an hour trying to pull contacts out of my eyes.....and was just about to tell my husband to take me to the er to have them taken out...and i told myself...well i will just try again in the morning..i didnt want to go to er...and the next morning when i opened my contact case to place them in there just case i could get them out...there they sat...lol....
Posted 11/19/2011 12:04 AM (GMT -5)
Lately I've been reading things wrong...but it's always hilarious what my brain comes up with! Yesterday I read "curling iron contraption" as "curling iron contraception." At least I get a good laugh out of my brain malfunctioning. I also forget normal words all the time, so I get to play charades at least twice a day. I can't help but laugh when someone starts talking about something so normal and it sounds like jibberish to me. Like the other day I was talking about Thanksgiving and I couldn't unaerstand why my mom wanted to get a turkey...I was just picturing a live turkey just gobble-gobbling around while we're eating pie! Basically, Lyme has made me STUPID...but at least I can laugh about it. My family and I always laugh about it.

Seems like driving is a big theme here. Luckily I've never had to close my eyes (that sounds scary!) but sometimes I just completely forget how to drive. Like I get in the car and can't figure out how to make it go. It usually all comes back to me but for the first few minutes it's like being 16 again learning to drive for the first time..."what do all those letters mean!? Does R stand for radio?" Ridiculous.
Posted 11/19/2011 12:22 AM (GMT -5)
Borderlyme, thanks you made me laugh and I could really relate...
Posted 11/19/2011 11:20 AM (GMT -5)
Oh!!!! The entertainment value for those that have families that at least understand that we are not faking it!! I only have my hubby and one of my four adult children that understand that, but we have had a great many laughs over the years because of the weird things I hear people say, the weird things that happen when I type, and the goofiest of things that can come out of my mouth!!

It's amazing to me how much it helps to be able to laugh at our little mishaps! Heck my daughter and I ended up on the kitchen floor laughing our rears off one day when I realized that I could no longer follow patterns!! We were putting together shish-ka-bobs (shortened to "bobs" for my benefit, LOL!) and my daughter just kept giggling about my attempts to assemble them when I couldn't understand the pattern! It wasn't long and we were a giggling mass on the floor!!!

Unexpected fun due to having Lyme is always theraputic for me!!

My Mom sent me a card during a time when I was really low that I love to quote - "Blessed are we who can laugh at ourselves for we shall never cease to be amused" just seems to fit!!!
Posted 11/19/2011 7:35 PM (GMT -5)
Yep its good to laugh at the trials.. I like the card also, Ive always figured if you can't laugh at yourself your taking yourself to seriosly!
Posted 11/19/2011 10:31 PM (GMT -5)
im glad to know im not the only one who thinks some of these things r funny.....i enjoy conversations on the phone with other lymies....neither one of us can never remember what we started talking about or how we arrived at our current topic....then we laugh and have to start all over....i laugh so hard with my lymie friends... we are both slurring our words like we are anebriated and cant hear and out of breath...i said well at least we will know what we will be like when we are old...lol
Posted 11/20/2011 10:57 AM (GMT -5)
Oh boy, LymieAngel!! Please, let's not go there!! My kids cringe when they think about having to deal with me when I get really old!! devil LOL!!

I think the best thing about having friends with Lyme as well is that you never have to explain yourself - even if you lose track of the conversation while you are in the middle of a sentence!!! LOL!! They understand how tired you are living with all of these symptoms and just how bad it can hurt!

I believe that it can be very helpful for those of us with TBI's to have a friend (or two or three :-)) that also has TBI's - I call mine "Lymie-buddies" and don't know where I would be without them! Probably locked up in a padded room with one of those really neat jackets where the arms are so long that they can tie them in the back so that you get to hug yourself all day long - a 'huggie jacket"!!! smhair

On a bit of a serious note though, in order to help my brain not go to complete mush I did things as Bucci said - only Sodoku was too hard for my brain to learn. So I used the easy crosswords and even 'find-a-word' puzzles when I got really bad. I read where it is crucial to keep the brain as active as possible, so that's what I did. I learned new hobbies - quilting, cross-stitch, and others as well. Anything to keep my mind active and working at as high of a level as I could achieve in any given day - and some days all I could do was veg on a couch, but that was okay too.
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