HealingWell
Search Close Search
☰

How much do you do on your own?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/7/2011 11:49 PM (GMT -5)
So right now I'm in the middle of my disability claim, so it'd be really bad timing to change doctors. Mine is alright, but I'm not satisfied with her treatment. She's very forgetful, tells me she's too busy to answer any questions I ask between appointments, and tends to keep pushing supplements that don't seem to be working (such as laurisine which I've been taking for 7 months for the EBV that has actually gotten WORSE since treatment!).

Anyway, obviously no one doctor out there is going to do EVERYTHING that everyone here does and suggests...but I really feel like my doctor isn't being nearly aggressive enough, and sometimes I feel like I'm missing out on the most well-rounded treatment available, and I want to do all I can to get better as fast as I can!

...I guess I'm just wondering how much of everyone's treatment protocol is what their doctor advises, and how much is trial and error on your own? I'm taking so many medications and supplements as it is, yet I see a lot of good recommendations here and I'm thinking about ordering some things on my own without consulting my doctor, but I don't know if that's a great idea.

Sometimes I wonder how it's even possible for all of these pills to work. I mean I take so many pills all at the same time...that's just a lot for my body to process, I'd think!

Posted 12/8/2011 12:25 AM (GMT -5)
Hi borderlyme, i have had chronic lyme since 1996. i tried anything and everything i read about that claimed to help. some did and most didnt.
i tried mostly natural things. here are some expamples:
1-completely vegan diet, no sugar, no flesh, no dairy, only fresh fruit, veggies, beans, worked but it was too difficult, only because it called for so much prep work and i was too sick to do all the prep work required for this type of diet. a good book by Dr. Andrew Wiles, i dont know if i am allowed to mention specific books on here, you can email me if you like
2-these supplements worked great for me... fresh garlic cloves/ crush them and swallow them with water. i used 2 per day. this acts as a natural antibiotic and good for immune boost. this helped me
also, echinacea is an herb that helps the immune system. tea or capsule
camamile tea, calms nervous system
dong qui or gota kola helped me remember things, but it kept me awake at night. scalding hot baths helped my pain the most.
one of the best books to have on hand is Titled: Perscription for Natural Healing. it list all ailments and what herbs and supplements are good for it. we should all have this one on hand. you are right, it is going to be trial and error and you are going to have to do the homework. hopefully you have friends and family to help research. most of the drs i saw would never acknowledge any herbs or natural remedies so i just stopped asking them and experimented myself. just do a complete research. some herbs contradict others and contradict some antibiotics so be careful, but it is all up to you. also a very good diet is essential now. low carbs, high protien, little dairy.good luck letgo
Posted 12/8/2011 9:10 AM (GMT -5)
I've had some success with colostrum for the EBV - if you try it, make sure it's in lozenge or pwder form so you can dissolve in the mouth - absorption begins there and down the esophagus....regular capsules prevent this and therefore lose much of the 'punch' of the supp.
Posted 12/8/2011 9:31 AM (GMT -5)
Thanks, yazzer, I was actually going to ask you about that. Did you get the colostrum from your doctor or is it something I can get on my own?
Posted 12/8/2011 9:47 AM (GMT -5)
I'm using Samento and Banderol drops along with my ABX. And, my infrared sauna which I've used three days in a row now. The drops really make me herx so I am increasing very slowly. I used them twice a day and am up to 16 drops of each. I really do think these have and are helping.
✚ New Topic ✚ Reply