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Posted 2/11/2012 9:46 AM (GMT -5)
PLEASE CAN SOMEONE OFFER ADVICE. I AM A 49 YEAR OLD FEMALE RESIDING IN ENGLAND. I HAVE HAD VERY MINIMAL CONTACT WITH BOTH HORSES AND SHEEP LAST YEAR AND DEVELOPED A BULLSEYE RASH. DIDN'T REALLY THINK ANYTHING OF THIS . HOWEVER FOR THE LAST 6 MONTHS ON AND OFF I HAVE SUFFERED LETHARGY AND DISSABLING LEG PAIN TO THE POINT THAT I NOW CAN NOT BEND MY KNEES. MY GP WILL NOT TEST FOR LYMES DISEASE AND HAS PRESCRIBED PHYSIO AND PAIN KILLERS HOWEVER I CAN PAY PRIVATE. ARE WHAT I HAVE DESCRIBED TYPICAL SYMPTOMS?

THANK YOU

Posted 2/11/2012 10:08 AM (GMT -5)
Hiya,

No doubt one of the forum moderators will be along shortly. In the mean time;

The symptoms you mention are indicative of lyme disease, especially the bulls eye rash.

Being based in the UK I suggest you join the yahoo group Eurolyme. They will be able to advise you further regarding specialist advise.

Frankly given your history of a bulls eye rash, the response of your GP to refuse a test (even though NHS tests are highly unreliable) is irresponsible to say the least. I would consider changing GP!

Hope this helps.

Hugh
Posted 2/11/2012 10:18 AM (GMT -5)
Welcome to the forum. I am sorry to hear you are sick. I would suggest that you start off by reading the first thread entitled "New to Lyme - Start Here." There is so much information there and also will list the symptoms.

A bulls eye is all you need to be diagnosed with lyme. I would stress how important it is to get to a proper dr. ASAP. This disease is nothing to fool around with. I started with leg pain also.

I would recommend that you research all you can so you are well informed. Lyme is very controversial, both diagnosis and treatment. You will have to be your own medical advocate.

Your best bet is to find an LLMD (lyme literate medical doctor). I wish you the best. Please keep us informed.
Posted 2/11/2012 10:40 AM (GMT -5)
Hi Barbaral, I'm in the UK too and been through the NHS mill, so if you requied any help regarding the UK procedure in dealing with LD I'd be happy to help steer you.......Unfortunately the NHS do not take this disease seriously enough and you will, if you do have Lyme, need to find a private hospital to treat you. My LLMD is in Hemel Hampstead, they are good but expensive.....I am now sympton free but I'm left with a few perminant reminders of LD so their treatment regime works......or did for me.

You have found a good place here, better and more knowledgable than the above mentioned forum. Learn all you can about LD because if you do have it you'll need to teach the Dr's about it.
Posted 2/11/2012 11:29 AM (GMT -5)
For the record and ref Miks last comments, any advise guiding new UK based lymies to Eurolyme on my part is not a reflection of my preference for EL but an acknowledgement of their greater familiarity with the system/ options in the UK including issues like dealing with the DWP. I don't think there is any doubt that the US are the most upto speed with lyme et al.
Posted 2/11/2012 12:35 PM (GMT -5)
Hi Barbaral!
Welcome to our little spot! I am so sorry that you even have a need to be here, but I think you've come to a great place to learn, get support, and be able to 'talk' with lots of other people going through the same things you are. The best news is that you are not alone in this!! It will be very important for you to learn all you can about these tick-borne infections as you deal with - from what I understand - is a difficult health system to get treatment from these infections. Things like Lyme rarely travels alone, what symptoms indicate which infection, that the testing for these infections is really poor and so on. So do please read through the post that Sprinsjean mentioned - "New to Lyme?...Start here!"

Another thing I would like to suggest is that you use our search function and enter the term "Breakspear", as we have had quite a few members from the UK that have used this hospital(?) to get treatment.

I do need to ask you to not use all caps any more though - that indicated shouting on a forum - I figured you might not know this.

We would love to hear a little bit more of your story, what kind of other symptoms you might be experiencing (we have a great symptom list in the New to Lyme? thread), and to help you learn about these infections.
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