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Lyme Disease
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Posted 4/12/2012 5:53 PM (GMT -5)
I dont feel so alone when I read your stories. There is a post on Dr. Phils website on the upcoming lymes disease show. The post mentioned how all the Doctors act like your crazy and how grocery shopping became a marathon. I FEEL JUST LIKE THAT!!!!!!! You give me hope to know so many others are struggling and fighting for answers.
Posted 4/12/2012 8:29 PM (GMT -5)
Seems like doing anything is a marathon, even on 'good' days. Doesn't take much to use up energy. Too bad we can't bottle energy while we have it and save enough up to have a good time for an entire day!

And, yeah, regular doctors...mine made me feel like some kind of hypochondriac, which I'm not! He said that, since my bite was in the summer I should be healed by now, among other things.

D'oh!
Posted 4/12/2012 9:15 PM (GMT -5)
How dare these doctors!! One day soon they are going to be the ones affected and we can sit and call them hypochondriacs. Shameful! It really hits home with me. I will NOT have ANYONE tell me I'm imagining it or over exaggerating! I'm beating my own a** everyday to get out of bed and STILL work through this AWFUL disease.
Posted 4/13/2012 12:31 AM (GMT -5)
My mom was told for years she was making it up. She passed away last month from Corticobasal Degeneration the Doctors believe. She was only 56 and if more Doctors had believed her we might be further in discovering the cure.
Posted 4/13/2012 1:14 AM (GMT -5)
Oh my god, how horrible, random. I'm very very sorry for your loss. I know how hard it is to lose your mom.
Posted 4/13/2012 8:29 AM (GMT -5)
Thanks Tickle

She was a beautiful wonderful free spirit with only love to give and she will be missed more than I will ever be able to explain.
Posted 4/13/2012 11:13 AM (GMT -5)
random, I'm so sorry to hear that :(
Posted 4/13/2012 3:59 PM (GMT -5)
thanks for the love
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