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Posted 6/5/2012 5:28 PM (GMT -5)
Looking for LLMD in the northeast,

Post Edited By Moderator (achievinggrace) : 6/5/2012 5:49:20 PM (GMT-6)

Posted 6/5/2012 6:55 PM (GMT -5)
Welcome to the forum!

I altered the subject of your post so people would easily see what you are seeking.
Posted 6/6/2012 6:37 AM (GMT -5)
Where about in the NE are you. I'm in NY, mid state.
Posted 6/6/2012 7:02 AM (GMT -5)
Thanks for responding.   I am actually helping my son who lives in CT and was diagnosed with Lyme.  In addition to Lyme he is developing ALS symptons that are progressing rapidly since January.  He is going to a neurologist who is leaning toward ALS and an infectious disease doctor who is now treating for Lyme but also believes its not Lyme that is causing his symptons.  He has been on an IV for two months with no changes but we don't know how long the doctor plans to do that.   So far, his insurance is covering the expenses and that is a huge concern if he switches doctors but we are not sure if he is being treated appropriately and would like to get a second opinion.  After doing tons of research, I realize LLMDs provide more than just administering antibiotics.  Any help would be welecome.
Posted 6/6/2012 8:10 PM (GMT -5)
Hi itstricky - welcome. It's so great of you to be helping out your son - having a good support system can make all the difference in the world!

I don't have any doctor recommendations for CT, but I just wanted to chime in with some information - there's a lot of talk about certain diseases - ALS included - being misdiagnosed when it's really lyme. Might be worth looking into just so you know what you're up against. I actually just got into this long discussion with my doctor the other day about it, and how in her practice she's seen ALS associated a lot with biofilms, and/or this thing they're only now researching called protozoa fl1953. I don't mean to scare or overwhelm you with information - I just wanted to share so it's in the back of your head if you end up looking for any missing pieces of the puzzle.

I'd also suggest taking a look at the new to lyme thread - there's a lot of great information there to help wrap your head around all of this stuff. Best of luck to you and your son, and don't forget we're here to help!

Posted 6/6/2012 9:00 PM (GMT -5)
Thanks for the info. We were aware of the possible connection between lyme and ALS and that is why its been so hard and complicated. His infectious disease doctor and neurologist feel he has ALS. They have been supportive but we know his iv treatment for lyme will not last once they officially diagnose ALS. He is having an EMG in a couple of weeks and that could influence their diagnosis. I appreciate you giving me the information and you are not overwhelming me - the more info the better and I can't be anymore overwhelmed than I already am. We are going to the neurologist on Friday so will ask about protozoa Fl1953 and the biofilms.

The bad part of changing doctors to a LLMD is not being covered by insurance and have no idea how we would pay for treatment. I don't know how anyone does it.
Thanks again for your help.
Posted 6/7/2013 10:27 PM (GMT -5)
Itstricky, My husband was diagnosed with ALS last summer. He tested positive for Lyme thru Igenex. If you want to know about his treatment - which seems to be helping him - you can write to me.
Posted 6/8/2013 7:46 AM (GMT -5)
Hi its tricky,

The best advice I can give you is to shop around. A few lyme docs take insurance - mine does though he doesn't take mine. And its only 120 a visit otherwise. Though my insurance doesn't cover the doc visits they are paying for about $800 worth of abx every month. I would recommend seeing an integrative doctor or checking out a naturopathic doctor. I have seen very rapid improvement within 3 months using these two. And if you would rather go with traditional medicine most of the naturopaths know of lyme literate physicians and who you could be referred to. I'll see what I can find out. I find it easier...to locate Naturopathic doctors and ask them for lyme referrals. They seem to be very helpfull.
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