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Posted 10/3/2012 9:54 AM (GMT -5)

Hi – I am new to this forum but my integrative MD suspects that I have lyme and would appreciate any feedback on this. I am a 50 yr old female.

I have been sick for over 20 years. My health really started to deteriorate after the birth of my second child at age 28.  My main symptoms have been chronic fatigue, fibromyalgia, chronic migraines, constipation, adrenal fatigue, low blood pressure, low body temperature, heart irregularities, chronic flu-like state, air hunger, memory loss, difficulty remembering people and events, difficulty with concentration , sore throat and ear canals, aching teeth, burning mouth, cold sores, mouth sores, boils, dandruff, white tongue, very dry and brittle hair, very low sodium/potassium levels per hair analysis, muscle twitching, parasites(roundworm, tape and fluke) , intestinal pain, bipolar disorder, alcohol and sugar intolerance. I have been on a disability for the past 8 years.

Five years ago I quit all meds. Four years ago I started eating a gluten, grain, sugar,  dairy free diet. I also had my amalgam fillings removed and did an intensive bowel and parasite cleanse. My health improved about 60%.  I was able to return to work part time. This last year I started a Nutritional Balancing program with www.arltma.com and continued eating the Paleo diet. I would say I am about 80% recovered but still crash badly if I over excecise or just do to much. Currently I am unable to excercise much. I would love to work again full time.

I am currently doing another intensive parasite cleanse with herbs. I have had very intense die-off for the past 4 weeks. During this I often feel like I am being pricked with a needle from the inside out.  I would really like to know what I have so I can focus my treatment in this direction. The test for lyme is $380 with my doc here in Canada. He sends it somewhere in the states. I don’t want to get this test unless I am quite sure I have this. I was bitten a few times as a teen 35 years ago while growing up in Manitoba. I have spent my entire life hiking, camping(in a tent) and spending lots of time outdoors here in Ontario, Canada.

I would love to learn more about what herbs to try. I am thinking of just treating myself as I have done mostly in the past.  Is Buhner the way to go without testing?

Thanks for any help.

Posted 10/3/2012 1:24 PM (GMT -5)
First - welcome to the forum. I hope you find much useful information here which will aid in your healing journey.

Second - not many people recommend the DIY approach when it comes to healing Lyme. There are just too many unforeseen issues. However, it sounds like you have a good doctor you're working with. Could you possibly lean on him/her for support?

Third - Lyme is primarily a clinical diagnosis, so many people believe that testing isn't necessary at all. While others will say to test only after being on a treatment protocol for a while.

Personally, I say save your money on the tests for now because the tests have a lot of false negatives, so they may not do you much good anyway.

Fourth - Buhner's book, Healing Lyme, is an excellent resource. If you decide on the DIY method, Buhner, Jernigan and Cowden seem to be fairly safe ones to try. If you don't respond within a few months, you might not have Lyme?

Jernigan and Buhner have books to help guide you thru, and Cowden and Buhner have online resources for assistance.

Research, research, research. You're going to need to educate yourself.

Lyme, because of its politics and controversy doesn't have that many educated practitioners available. I think you're pretty lucky to have found one - especially in Canada from what I've read.

I'm not a medical practitioner of any sort. These are simply my personal opinions.

Your story sounds a lot like mine, and I'm still searching for answers - and a natural practitioner.

We live in the sticks. So the best I can hope for is someone to guide me, and maybe be responsible for part of the treatment, as I continue to treat myself to some extent....

I hope you find full healing.
Posted 10/3/2012 5:25 PM (GMT -5)
Our son has had lyme for over 20 years and tried everything and the only thing that helped is a coil/rife machine.  You sound like you are really giving your body every chance to get well and so glad you are getting better.  If you live in Northern Calif. you would be most welcome to drop by to see if the machine might be of help in your recovery.
Posted 10/3/2012 8:59 PM (GMT -5)
Hi Onward50 - welcome to the forum!

It's great to hear how well you're taking care of yourself despite all that's going on - it's so frustrating to go above and beyond to take care of your health and still not feel 100%, isn't it? Of course, none of us here can tell you whether you have lyme disease. If you plan on going a natural route, it's probably less necessary to test positive as sometimes that's just an insurance matter. Still, it is a helpful guide (blood tests) and if you have insurance, they may cover part of the testing.

I have had some pretty good results using Buhner's protocol, and I know other members here have used lots of different herbs - both as specific protocols and just through their own research or work with an herbalist, and have had good results. Detoxing is also crucial with lyme disease. There's a lot of great information the "New to lyme" thread - both about detoxing and also about symptoms, so maybe you can further narrow down whether you think you're likely to be infected. I'd also take a look at the co-infection symptoms, as these can often be a huge obstacle in treating lyme disease effectively.

Best of luck - we're here to help however we can!
Posted 10/3/2012 9:58 PM (GMT -5)
Thank You so much borderlyme and jwjjtt for your replies. This is another learning curve to be sure. My integrative md is a wonderful man but I'm not sure he is that up on treating lyme. I have had good success eliminating a very bad roundworm, tape and fluke infestation using herbs alone. He did say that I muscle tested for 2 herbs that I had not heard of before. I just don't think I can do the anti biotic treatment. I feel in my heart that I can treat this with herbs. Or maybe I can't. Anyway I think this is the route I will take. I'm quite sure he will treat me without testing. He also respects all of the research that I have done.

Allieanne if I had the money I might invest in a rife machine. I'm happy your son is finding relief from this.

I do understand the importance of detox. Thanks to this site I took my first epsom salt/ hydrogen peroxide bath today. Oh my goodness I felt so much better after that alone. I will purchase a couple of books and hopefully start ordering the right herbs.

Again thanks! Hopefully the next time I post I will be better informed.

Posted 10/4/2012 10:34 PM (GMT -5)
Post any time. The forums are great for all kinds of topics. Just venting can be helpful, even healing sometimes.

It's interesting to track people's progress as we all journey toward optimal health.
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