Feels like I can always feel my blood moving around , like getting stuck in my feet , or wherever ... like for example if I squat down to get something out of the bottom of the fridge I can feel my blood congest in my lower legs , then when I go to stand up I feel like my blood pressure drops and my head will feel tight and my heart will pound out of my chest trying to move it where it needs to go :-(

I feel like I am 110 yrs old , I know old people who dont act this weak or tired !

I wish I had a cure for this symptom , nothing seems to help . It comes and it goes , good days and bad days , sometimes not bothering me at all , and other times doing it so badly that my vision goes dim and I feel like I am going to fall apart and collapse and it might be the last time I see my kids

F this s%#@! ( sorry ) but  really .. this sucks ,. how are you suppose to keep a positive outlook or just "ignore" when your body just wont work ? Sorry not really asking , just sayin '

Wow! I get that on occasion and never really thought much about it and definitely couldn't describe it quite as well as you just did! I have an appt with my doc today and will ask him about it!

yes it does feel like I am going to pass out when this happens , like a hundred times a day , usually that sensation of the blood not moving is followed with the heart pounding and struggling , and then I will feel very short of oxygen and have to gasp and sigh until I get a satisfying breath , then that is followed with the trembling and shaking with jello legs !

what the heck does one do ??? Like its lyme , antibiotics are bad and hurt you in the long run , dr.jernigans products are going backwards and they obviously are not helping so am I just going to black out and ???? could I die from this ? I mean if I cant stay concious ?
I just feel so lost. I dont have health insurance right now , and in order to at least get mainecare back I have 3 yrs of income tax returns to prepare and file ( complete with accounting for each year , so obviously its not getting done with as sick as I feel most days ) ...
but even if I had insurance what are the regular doctors going to do about it ? Even if they thought I had lyme they prob would just do antibiotics and I dont even know waht I think abbout that

ARGH , just feeling like poop today and having a hard time being positive or hopeful . I use to feel like I needed to keep positive because it would go away and I would feel better, but as many times as I have felt better only to go back to feeling so sick and scared than it just is nothing to look forward to , if its not really gone , just back and forth , Iam getting so tired of the struggle .

This sounds like POTS (postural orthostatic tachycardia syndrome).Matches symptoms exactly. You can read about it online. I have it. It's yet another symptom of Lyme Disease. The good news is, it has improved quite a bit for me while on abx. treatment.
Some things that can help with symptoms-increased salt (tons!), fluid (tons!), strengthening leg muscles, rising slowly, compression stockings (I'd only recommend this if it's really bad. they are uncomfortable to wear). Gatorade and other electrolyte drinks are helpful. Hopefully, it will improve w/ treatment. I think it does for many Lyme patients.