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I Really Hate Anxiety and the Spatial Issues...Thoughts???

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Posted 8/6/2013 9:08 AM (GMT -5)
Well I'm still on cloud nine from my family visiting! I'm completely overjoyed. I really wish though that the anxiety/arkward gait/spatial issues/fogginess went away. I've been undergoing treatment regularly for 5 months and it's still an issue. It's almost like clockwork that around 9am my body needs the Lorazapam or I can't walk around huge spaces without feeling like I'm going to fall down or get a little jumpy. It just hits and sometimes I'm cruising through until 11am or 12pm without it. It's so strange.

How has everyone faired with this nasty symptom and when oh when does it go away. I know it has a lot to do with Lyme effecting my cerebellum area of the brain. But I hate it :-(

Pray for me...but through it all I'm happy that my son had a great birthday and I pray knowing that this too shall pass and I will have my normal life back sooner rather than later. I'm very determined to get my life back and then some!!!!

Posted 8/6/2013 9:45 AM (GMT -5)
Hi Wryter,

I've said this many times before but the balance and spacial issues were even more distressing than the unbearable foot pains.

When out walking with my dogs I would look back at the distance I had walked and panic,this would cause me to clamp up to such an extent that I could't propel myself forwards.I was literally incapable of putting one foot infront of the other.

Coming downstairs was a nightmare,like looking through a tunnel and I felt very dizzy.

I often went down on my bottom so as not to fall.

NOW, the good news,this has all stopped,after about 8 months of treatment these problems started to resolve themselves :-)

You should see me run down the stairs! I am able to travel on trains,buses........you name it.

12 months ago I couldn't even stand without having balance problems but in 3 weeks time I'm off home to London and I can't really believe it ,so much healing.

You will soon be making plans.......dancing to the African beat.......and who knows what else.

Tickled
Posted 8/6/2013 9:55 AM (GMT -5)
Okay your testimony brought tears to my eyes. I hate the fact that I need a pill to even me out and I looked at the calendar and saw how far I've come and how many symptoms have dropped off but these nasty ones like anxiety just won't quit without a pill.

It's so refreshing and a relief to be reminded that this too shall pass.

And WOW about your trip! I miss traveling and it's on my laundry list of things to do. I wanna go on a plane and roll out!

Thank you for sharing that one day this will be behind me and I won't need a pill to straighten things out and yes I will dance and perform spoken word again and I can't wait!
Posted 8/6/2013 10:01 AM (GMT -5)
The spatial issues are the worst. And I have such dizziness as well it is awful. I have only been on treatment for a few weeks and still have to add in 2 more antibiotics. I am really nervous about how I will become after that.
Posted 8/6/2013 10:07 AM (GMT -5)
Hi Angel and welcome my dear. I will say this...I'm on a low dose of anxiety meds (Lorazapam .5mg) and one pill works for me for 24+ hours. No spatial issues, anxiety...nada. It will get better.

I was having a bad day because my body sometimes doesn't need it until later in the day and I thought today was one of those days until I walked across the large building I work in and almost went bonkers! I get frustrated and it is scary but you should ask your doctor for something to help with that because that is a symptom of the anxiety (arkward gait/spatial issues/fogginess).

Just read Tickeled's comment above...I'm even more hopeful that this nasty symptom will go away!
Posted 8/6/2013 10:26 AM (GMT -5)
Wryter,my sweet,

There are so many things you could "hate" yourself for...........neglecting your son,being a selfish uncaring person,all of which you are most definitely not!!!!!!!!!!

If you need a pill to get you through the terrifying bouts of anxiety,take one.

I am amazed at the bravery and fortitude of the members on this forum,not only do they struggle daily to fight this hideous disease,they find the time and the strength to help others,it is truly remarkable.

You are such a caring and special young lady,be as kind to yourself as you are to others,you deserve it.

Tickled
Posted 8/6/2013 10:56 AM (GMT -5)
Thanks Tickled...we all need reminders at times (I know I do). Taking my son to the playground last week made me cry because I was so happy to be able to play with him outside and after this weekend with a ton of guests in my apartment I knew I was blessed and that God hears my prayers. Just one day at a time.

I will be on here one day talking about traveling on a plane to Hawaii (that's on my list) or Disney World :)

We are true warriors and after we get out of the woods the strength we will have for the rest of our lives will be amazing!
Posted 8/6/2013 3:41 PM (GMT -5)
Hi Wryter,

I'm sorry that your anxiety is giving you a hard time. It's just a 'simple' tool, but I find it a very helpful and powerful... meditation. It helped me a lot to get rid or to decrease anxiety. When doing it regularly it works for a long period of time even if you stop it after a while. If you would like to start it, there's a 21 day meditation challenge you can enroll to (it started on Monday), it's organized by Deepak Chopra, it's free. I got this information a few years back from my meditation teacher, and am in no way affiliated with his organisation. It's a good tool to get into the habit of meditating.

Like Tickled, I sometimes panick when I'm going out for a short walk (500 meters), halfway, I start freaking out I won't make it back home...

Before, I would freak out on the bus or the metro, that someone would step on and start shooting people (I live in a safe city), most of the time I was calculating and preparing what to do, how to hide or run if such thing happened.

I've been living like this for years, knowing I wasn't crazy, but that it was after all a crazy thing to think about...

Or I get sudden attacks of claustrophobia.

Automatically starting breathing excercices to avert an anxiety attack may be helpful. There is plenty of information on the internet, easy breathing excercices.

MarieLS

Posted 8/8/2013 3:53 PM (GMT -5)
Thank you so much Marie. I spoke to my kinesiologist and he pointed out that these flares always happen a week before my period. So the hormones are off (hence I'm on stuff for my adrenals) but I'm going to get my thyroid tested soon.

TickledPink I copied and pasted your post about you traveling and me dancing into an email message to myself so when I feel like this I can just look it up and know that the best is yet to come!
Posted 8/8/2013 4:12 PM (GMT -5)
I too get this. Especially when I am driving. I think it's all the movement of the traffic, the freeways make me go into a state of panic. Stores and the lights seem to bring it out also, but I am noticing that is getting better. I don't have to position my body in a certain way to hold myself up. I had had several scary times where I need to hold onto walls, or lean on things. I've learned to deal with it over the last 8 years since none of the Drs could figure it out.

Now with being very ill and with treatment it has come out full force, I cannot WAIT for it to clear up!! I will feel better than I have in years ;)

I can already tell that my central nervous system is calming down, and what an amazing feeling it is to feel calm inside your skin.

TheWryter...Happy 2nd birthday to your son! My little guy turns 2 tomorrow!! They are the same age :) I am so glad you were able to have a nice birthday with him and your family!!
Posted 8/8/2013 5:46 PM (GMT -5)
I was about to post a new topic asking for a recommendations on what to do or take for the spatial issues when I read this topic. It is incredible how identical the symptoms are of LD infected people. I just had an EKG done yesterday when I visited my doctor because my heart has been racing because of the spatial issues. Some days are worse than others and I seem to be stuck on "worse" mode.

As I was reading through the threads, I thought that maybe carrying a rubber ball that we can squeeze when we feel the panic might help. It gives us something to focus on other than what we are feeling at that moment. I will have to give it a try. As for me, I have to drive 145 kilometers in heavy traffic each day to and from work. It is so hard that when I finally arrive to the parking garage, I stay seated for a few extra minutes just relaxing and calming myself down. I then have to walk 4 city blocks from the car to my workplace. That in itself is a challenge. I found that if I walk looking down a few feet ahead of me it is easier to walk. As soon as I look up I get disoriented and everything starts to spin around me. I am getting used to it because when it first started, I had the worst time. My wife keeps reminding me that I have been worse but it just doesn't seem so.

One other thing...I recently flew to Florida and let me tell you...I had the worst time because of turbulence. It seems that somehow my body amplifies the movement or maybe I am more sensitive to it because I was miserable each time we hit turbulence. On the way home I just took a nap and that helped. This LD has made my senses more sensitive (hearing, smell, and now movement) that I think that's what it was.

Post Edited (Healing98) : 8/8/2013 4:50:29 PM (GMT-6)

Posted 8/9/2013 1:54 AM (GMT -5)
Healing98,

I too think it's important, once you start feeling like you are going to panick, to push yourself to focuss on something else. It requires a lot of exercice, but it pays off.

Posted 8/9/2013 9:33 AM (GMT -5)
I don't feel so alone anymore. I wish we all lived by each other so we coulf carpool and help one another out!

WarriorMom thank you for the bday wishes and same to your little guy. 2 is something else! He got a shot yesterday and wasn't happy at night so he slept with me and I had a bad sleeping night (felt the buzzsaw inside me and I haven't felt that in months). But when I rolled over I knew that I'm going through this crazy healing process to be a stronger Mom for my lil one and also closer to God and my purpose.

Healing98 I'm so sorry about your commute! Dear God that's a lot. I know the feeling. I loved going to Target (that is my #1 store). I haven't stepped foot in there since November. (sigh). But I'm going to try one evening to see how it goes. Sometimes even with the anxiety meds the symptoms sneak out.

Let's keep each other encouraged. That's all we can do and I truly believe that one day we will all be running, flying, dancing, doing whatever because we would have kicked Lyme and it's friends to the curb for good!

Posted 8/9/2013 10:05 AM (GMT -5)
Yes,wouldn't meeting each other be a hoot smilewinkgrin

I guess we just have to be grateful that we live in an age where we can communicate so easily through this forum, people who had Lyme decades ago must have been so alone and very scared.

Tickled
Posted 8/9/2013 2:41 PM (GMT -5)
My goodness, I never thought of that TickledPink. I'm so glad I have you guys and gals 24 hours a day. In the beginning there were times I couldn't sleep and would log on and sure enough other people couldn't sleep. It felt good to not be alone.

Yes it would be a hoot to meet a lot of you! One never knows. When we all get well maybe we can raid the halls of Washington, DC together at the Capitol or whatever country folks live in! :-)
Posted 8/10/2013 9:42 AM (GMT -5)
Hi all,

I spoke to my LLMD the other day about my anxiety and asked for a prescription for Lorzapam but she wanted me to try a natural method first. idea So, she gave me a supplement called L-Theanine, and guess what - it is actually working. The one I take is from Douglas Labs.

Just wanted to share this all with you!

turn
Posted 8/10/2013 3:28 PM (GMT -5)
That's wonderful! I use that in the afternoon to avoid taking another pill of Lorazapam. I tried totally natural for my anxiety and it didn't work :-( so glad its totally working for you.
Posted 8/10/2013 8:38 PM (GMT -5)
Chiming in here! I can attest to using L theanine amino acid. I use the suntheanine brand. It absolutely works. My sister uses it too. I suggested trying it since she was tired of paying for anxiety meds so after coming down from those she started the l theanine and says her anxiety has been almost non existent since starting it. No side effects and works. Grab it at the vitamin shoppe. And I'll add that there are bad brands out there so I would stick to the suntheanine brand as its said to be the best quality.
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