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Posted 9/13/2013 11:36 PM (GMT -5)
Hi, I'm 25 years old and was diagnosed with Lyme a little under a year ago. I also had mono at the same time of the diagnosis so all the symptoms were pretty confusing.

I had been going to doctors for years with extreme fatigue problems until this diagnosis came. I believe I contracted the Lyme in 2008 due to rashes on my arm which I had stupidly ignored.

I did the whole antibiotic thing but I still feel horrible. Lately my bones throughout my body feel like they're on fire. Also, I've been getting extreme muscle spasms in the pit of my stomach which wake me up at night. Has anyone else had these problems and were they associated with Lyme?

My doctor ignores me when I talk about certain things, she says it could be stress or diet related etc etc. I have a feeling it may be related. I'm a healthy weight and fairly active.

Soooo, also does anyone know of a LDMD in Massachusetts??

I'd greatly appreciate any help!
Thanks
Posted 9/14/2013 7:53 AM (GMT -5)
Hi Tarajean and welcome!

So sorry you are not feeling well.  Have you read the sticky thread on top of this forum called "New to Lyme? Start Here!" as it contains valuable information.

I believe if you learn about detoxing and start incorporating a detox regime daily it will eliminate many of your symptoms. 

When I was sick with chronic lyme I remember my bones hurt bad, my legs really hurt so the point where I was crying (and I'm not a cryer as I have a high tolerance for pain).  I knew nothing about detox baths back then until I joined a forum (not this one) and people were talking about detoxing which I thought was nuts.  It didn't make sense to me back then but then I said to myself "what to I have to lose by trying it?"...  Well, I attribute detoxing to my getting totally well. 

Most people that I personally know that have become well and stayed well like myself did not use antibiotics, they used alternative medicine but thats a choice every person has to make.

As I always say, if your current protocol is not making you feel better then perhaps it's time to become your own advocate and start reading books, articles, etc. and find what protocol will work for you.  You simply may be allergic to antibiotics (most people are and they don't even know it in my opinion).

Diet also plays a HUGE role in this disease, most people are allergic to gluten, lyme spirochetes and sugar do not get along, etc.   Lyme taught me how to eat healthy as well as so many other things. 

I wish you the best,

Denise

Posted 9/14/2013 11:37 AM (GMT -5)
Denise,
Thank you so much for the advice, I really appreciate it. It's nice knowing that you once were in the same situation and are now feeling healthy.

I was put on Antibiotics for 2 months but i'm almost positive that didn't help anything but the fever and sweats.

I will definitely check out different forms of detoxing and maybe change my diet around a bit.

Thanks again for your advice,
Tara
Posted 9/14/2013 7:04 PM (GMT -5)
Hi Tara,

I'm sorry to hear you are not feeling well. I agree with everything that Deejavu has said. And I would definitely get an LLMD. I don't think two months of antibiotics would have done much to eradicate most infections unless it was caught in the beginning.

I would also suggest looking into alternative methods and diet and detox suggestions in the New to Lyme thread. There is a lot of useful information on this site and I attribute my healing 100% to the members on this forum. Also, find a more sympathetic PCP, they exist.
Posted 9/14/2013 7:19 PM (GMT -5)
Hi Tara,

Start a new post and put 'Looking for a LLMD or LLND in Massachusetts'. One of our members will get back to you. You can also research Jernigan's or Buhner's Lyme disease protocol to get more information on the herbal protocols. Take a deep breath and do some research and if you have any further questions please ask them.

Patty

Oh, and please enable your e-mail in your profile so our members can contact you with Dr.'s names.

Post Edited (summer16) : 9/14/2013 6:26:52 PM (GMT-6)

Posted 9/15/2013 7:50 AM (GMT -5)
I wanted to tell you what I found that is helping with my pain. I tried some prescription drugs, they weren't helping, me so my sister brought me some nettle leaf, it's a herbal pill, and it's helping me a lot, it may help you, and it's not expensive to give it a try.

I am sorry you are in so much pain, I have been there many days, My eyes are not working so well today, so I hope this come out okay.

justme
Posted 9/18/2013 8:16 AM (GMT -5)
In my experience the pain the stomach was related to gluten sensitivity. I had to eliminate whole wheat and I take a Celiact supplement that really helps me (high in B-12, probiotics, and herbs to heal the digestive system). I hope you start to feel much better soon!
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