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Posted 10/11/2013 5:26 PM (GMT -5)
Hi everyone! Is it common to lose weight with this disease? When I was first diagnosed, I weighed as much as I ever had. Now, Im several pds lighter and don't have much of an appetite. I dont know if its because I'm eating healthier or this disease mad   Anybody have loss of appetite?
Posted 10/11/2013 6:11 PM (GMT -5)
That is the last symptom of mine that hasn't let up. Loss of appetite. I'm treating for babesia natural route so I'm hoping it resolves. Also when I was yo-yoing on abx (on/off). Off abx I always gained the weight back that I lost pretty rapidly.

My herbalist gave me a good recipe for a protein shake

- 1 cup of almond or coconut milk
1 tsp of cocoa
-1 tbsp of almond butter
-1 tsp honey
-2 tbsp rice protein powder

Its kinda not great Its basically homemade ensure. I have consistency issue with it because it is thick. So if I throw in a frozen banana and make it cold it is much better.

I think it is about 300 calories.

I also did the GAPS diet for lunches only. Lots of fat lots of nutrients in the broth. Its really easy to get down and healing my gut. I do bone broths now and those I really start to crave.
Posted 10/12/2013 2:13 PM (GMT -5)
I've gone through both sides of this - loosing too much weight and then I gained too much! shakehead

It's best to think of your food as medicine. We always take medicines that don't taste too wonderful! If you eat smaller portions, more often it should help. It's like snacking all day long! Also try to keep more of your food choices to those things with lots of healthy calories like nuts, avocados, peanut butter (no sugar though) (YUM!), Quinoa (222 calories in a cup!).
Posted 10/12/2013 6:55 PM (GMT -5)
I eliminated all sugar from my diet and I've lost 23 pounds in a little over 2 months. I continue to lose, but it's not as much as in the beginning of treatment.

Mine was strictly from the diet change because I've had a normal appetite.
Posted 10/12/2013 7:26 PM (GMT -5)
I've also lost a lot of weight (about 40 pounds in 18 months), but its mostly because I was forced to alter my diet and exercise routine.

I will go through drastic swings if Im having a flareup though: Herx/Candida flareup --> major joint inflammation --> no exercise --> weight gain


Edit: I wanted to also mention that if you are on ABX and you have huge swings in your weight, you might also want to make sure you are supplementing with a large amounts of probiotics. Probiotics seem to play a central role in just about everything with this disease.

Post Edited (vcast) : 10/12/2013 7:34:18 PM (GMT-6)

Posted 10/13/2013 5:39 PM (GMT -5)
I'm with ya! I can't fit in most of my wardrobe because I've lost 20 pounds. It was more but I gained a little back. It was strictly this disease. I do the protein powder shakes too, love protein bars that are gluten free and eat/snack throughout the day. My weight is consistent but I'm looking forward to gaining some back.

Hang in there...
Posted 10/13/2013 7:15 PM (GMT -5)
Same struggle here. Loss of weight, clothes getting baggy. I think the high protein/low carb diet I'm on is contributing to it.
Wasn't there a diet going around in the 80's or 90's that let you eat all the protein you wanted and you still lost weight? My memory is failing me, sorry..LOL
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