spinning my wheels'

 

  I have spent thousands and thousands of dollars, well I don't want to see exactly how much I have spent to try to get better

  it has not worked for me

  still feel only 1% better.

  could not do anything this weekend, except laundry

   and that was the biggest deal,

   pulse is really high

   out of breath

  babesia, bart,  and I still feel awful and mad at the world

   my body is not responding, I still have most symtoms,

   and now being almost literally broke, well that doesn't help of course

   so I don't know what I am going to do

  but I do know it is time for something else

   feeling like a mouse on a wheel, spinning but going no where

   journey continues...  this disease is totally unfair and it is just awful to suffer and have your life fall apart, despite trying your best to step out of it,

Sorry you are having such a difficult time with your Lyme symptoms right now. It is so hard to know what is the right thing to do to feel better when there is so much unestablished as consistently effective in the treatment of tick borne diseases. And financial drain only adds to the stress and therefore, at least in my case, to the symptoms as well.

I have found it easier this last ten years of being sick to deal with the physical symptoms and limitations than I have found it to cope with the loss of health and a sense of well being.

There is little I can tell myself that makes the loss diminished except for something I learned recently in a Lyme support group by listening to others. Acceptance is what I lack. I am not sure yet how to accept life as it is, but I have come to the conclusion that my life will be better when I quit fighting with reality and start my journey forward from where I am rather than lamenting where I am not.

I do not know where you are in that process, and maybe it is not even an issue for you, but that is my frame of reference right now and I offer it for whatever benefit it may have.

I hope tomorrow is a better day.

Rose

I agree. I have spent so much money on herbal remedies, and doctors appointments, and specialist appointment,s and prescriptions and so far I am still feeling like I am at square one and am waiting to see the light at the end of the tunnel. I agree wellbeautifulspirit that this disease can drain you financially, emotionally, and physically. It is so hard. I wish we all can start getting well or at least feeling better. All of us.. because we all deserve it. We have all worked so hard to get well.