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Body doesn't respond to external factors

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Posted 4/20/2014 1:14 PM (GMT -5)
One big issue I have noticed since I have become sick is that my body doesn't respond correctly to external stimulus anymore. I can't go shopping, go to parties, etc. because my body stops functioning and I get really sick and get close to passing out. My mind also gets even more foggy than it usually is. I also have POTS too. The only thing that helps is anxiety meds like xanax or ativan, but I have limited supply of these for "occasional use."

Has this happened to anyone and has anything helped? It's impossible to live any life at all like this. Thanks!
Posted 4/20/2014 5:36 PM (GMT -5)
Sensory overload is common with POTS and Lyme. This should improve with treatment.

Sometimes, detoxing can reduce the severity.

Make sure you have adequate adrenal and thyroid support.
Posted 4/20/2014 5:53 PM (GMT -5)
I'm the same Joyful, 95% of the month I can't drive, go out far in general, one of my main symptoms is sensory overload, I constantly feel disconnected and on the verge of fainting/stop breathing
Posted 4/20/2014 8:18 PM (GMT -5)
CarlG - how long have you been in treatment? It's been 4.5 months for me, but didn't really start on a stronger treatment until Lyme was confirmed 1.5 months ago. It just feels like it will never go away.
Posted 4/21/2014 11:40 AM (GMT -5)
I've been ill for over 8 years and found a llmd late last year and litterelly started a big course of antibiotics and probiotics just under a week ago, I've been in bed in a bad way since, I'm hoping it's just a major herx / shock to my system kinda thing.

From what I've learnt I believe detoxing and changing your diet is an extra way to help the medicine help you.

But I can 100% sympathise with the feeling of it never going away back in 2010 I had it constant for 11 months, then out if the blue I was fine for a few months. Then, unfortunately back to reality a few months after that being house bound etc. It's extremely depressing and a lonely place isn't it.
Posted 4/21/2014 11:59 AM (GMT -5)
Let us know if anything helps. I am hoping this isn't a permanent thing for either of us. People keep telling me "you will get better" but somedays it's hard to believe that when you feel near death many days. Oh and the fatigue kicked in very bad for me once I went to the llnd. So bad that I had to stop what she gave me to work on detoxing and I'm going to be taking some time off work soon. I couldn't get out of bed either. Best wishes to you!
Posted 4/21/2014 12:13 PM (GMT -5)
Yes I agree with the sensory overload. But I have none of that anymore so it definitely improves with treatment. The thing about treatment is that herxes make it worse so we think we are getting worse sometimes!

Back in February I was travelling on a winter road with lots of bumps and it was a long drive. It freaked me out!! Normally I would have been fine doing that but with all the trees moving by in the side window and the vibration from the road bumps it made me crazy and I felt intense anxiety and felt emotional and started crying it was so bad! I just had to wait it out and got to a calm area which helped out big time. Try and calm yourself down in a quiet place when this happens, it helps.
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