Anyone here been diagnosed with CCSVI ?

Wondering if anyone else been diagnosed with this
What you did if anything to resolve.

It really all I have left but it's really stubborn and difficult
To treat as the blockages in veins of neck seem to also
Travel to places between temple and heart.

I am trying various things but either it's too slow
Or herx is too strong going aggressive. Trying to find
Middle ground.

Anyone attempted stenosis ?

I only have fatigue as primary symptom and
Pain that used to be primary and severe is down
to 10 perecent and off all medications. For me that's
A miracle.

I hope now that this CCSVI can resolve
?
It's proving to be most stubborn issue I've
Had to tackle and the last I'm thinking

I'm trying. Yes.
In using biofilm treatments and laser and some plusing of abx
But it is stubborn

It deens to be a strong version of biofilm
It attaches to vein walls and becomes harder
over time.

I am getting consult about surgery
But yes many people say it can reblock
In years after but if your treated and treating
The infections it shouldn't.

Thing is. I worry if they go open them
And not removed blockages and clean the veins
They are leaving behind the problem.

I am waiting to talk to a doctor who does this procedure
And find out why they don't do that.

My uncle had it don't many years ago and
Ended up with a clot to brain and died !
My family is warning me and also if they push up
The line through or into the blockage it does seem like it could be dangerous ??

Uhgh. I'm thinking over the procedure for last
Year but not keen on it.
My doc agreed they need to advance the procedure
To remove blockage stuff and clean the veins and not
Just open them.

I heard with normal plaque stuff they can
Clean the veins. So I'm not sure why this is different ?