Symptom of Lyme disease or something else...how do you know?

So, I am struggling with that. How do we know if the symptom is from Lyme disease...or if we should be considering it separate?

I have a tendency to pawn everything off on Lyme disease.

eg: my tailbone pain....should I be requesting an MRI to rule out cancer?
- my frozen shoulder, burning pain in arm
- my thin skin on my hands
- the funny little nodule on my right foot that just appeared out of nowhere

How does everyone deal with each symptom? and how do you know?

I agree with what Opugirl is saying here. Lyme causes sooo many different symptoms that it's easy to just push the blame on Lyme, or doubt that Lyme can cause all of those symptoms! I was in denial for about 6 years!

Do you keep a symptom journal? This is a very effective way to see what your symptoms may be indicating as you can relate it back to what was going on during that time.

If you are truly concerned about cancer, heart issues, and the more serious stuff like that, then by all means, get it checked out. Peace of mind is priceless. Your tailbone hurting could be from Neuro Lyme though, the thin skin is a symptom of the ACA rash seen in the late stages of Lyme disease for some, frozen shoulder - another Lyme symptom for some, and depending on the exact spot on your foot that the nodule showed up, it could be a Morton's Neuroma (www.mayoclinic.org/diseases-conditions/mortons-neuroma/basics/definition/con-20026482).

Have you tried heat for your shoulder? Ice may work better for some.

Do you take anything for inflammation? Reducing the inflammation helps with pain (even in the tailbone sometimes) for many. For natural inflammation help, a combination of turmeric, boswellin, and ginger works well for many and it helps with the pain in turn.

Just some thoughts.... I hope you find answers and relief soon!

Girlie, having cancer on your tailbone is pretty rare. I am sure you dont need to worry about that. Last year I was under a lot of stress before my wedding and my tailbone hurt a lot. Could be stress related. Hang in there!

I hope you find the answers to those items.
I do the same thing.
Just say to myself its from the disease
But
We all can have other problems like rest of the population.

Try some other forums for answers.
You don't have to stay in just this one even though it looks like there is a post from moderators requesting you simply stay here.

We all can learn so much from eachother cross referencing.

I'm
Asking the CFS people about fatigue and CCSVI and am
Going to ask the MS people too who are told CCSVI is a MS problem as the doc who discovered it had a wife with MS and he cured her by the surgery.
It now is seen in Lyme and many other diseases.
But its new.
And to learn I have to ask around and also share my story of Lyme which is part of me. Maybe it can help others.

Your symptoms may or may not be associated.
Could be viral things such as many CFS a diagnosed people and they speak about viruses when Lyme community has that as a side thought. But its a big part of the picture as my viruses take turns with Lyme and co infections and are an issue.

I believe even in my breat tunes

I hope you find the answers to those items.
I do the same thing.
Just say to myself its from the disease
But
We all can have other problems like rest of the population.

Try some other forums for answers.
You don't have to stay in just this one even though it looks like there is a post from moderators requesting you simply stay here.

We all can learn so much from eachother cross referencing.

I'm
Asking the CFS people about fatigue and CCSVI and am
Going to ask the MS people too who are told CCSVI is a MS problem as the doc who discovered it had a wife with MS and he cured her by the surgery.
It now is seen in Lyme and many other diseases.
But its new.
And to learn I have to ask around and also share my story of Lyme which is part of me. Maybe it can help others.

Your symptoms may or may not be associated.
Could be viral things such as many CFS a diagnosed people and they speak about viruses when Lyme community has that as a side thought. But its a big part of the picture as my viruses take turns with Lyme and co infections and are an issue.

I believe even in my breast tumors ! I believe are viral.
The type of tumor I researched is like a wart type growth.

I have the thin skin thing too
Bot sure your age but I figured its part of it for me.
Maybe not. ?

It's interesting question and everything is interrelated but not everything is not just normal aging or caused by other things too.

LoveTheLight said...

Try some other forums for answers.
You don't have to stay in just this one even though it looks like there is a post from moderators requesting you simply stay here.

Actually, what we (the Mods) were saying is that members shouldn't be going to other forums here on Healing Well to convince members that they have to look into Lyme disease as the cause of their symptoms. In other words (and I'm not accusing, only explaining) please don't go to the MS or Fibro forums and tell any of those members that they need to be tested and/or have Lyme disease, or any other tick-borne diseases.

I promise that's all!!!!

If a member here wishes or needs to post in another forum due to having, or suspecting that they may have that condition as well, we encourage you to do so!! Who better to talk with than someone who is dealing with that condition?? I posted and participated in the thyroid forum and the Alzheimer's forums (for my F-I-L) here on Healing Well before.

Sorry Mods have a hard job
Manynoeoplebthroeong not aware of
Lyme disease at all. Like me years ago

Thank goodness for those who urged me
To look into it that were on forums for FMS and
CFS etc.

Those forums seem to have no issue when
I post there or suggest or point to Lyme as a
Possibility.

I will continue to spread the word and educate
Anyone I come across as it was done for me.

It may help someone and it may not.
They are helping me too find the full picture
By sharing there experiences and causative facters.

I am so sorry but I won't be told what to talk about
Or how to not bring up Lyme or vector borne illnesses
As possible causative factors just like a virus might
Be plaguing me right now that many CFS prople dud is
BUt not do much here.

Sorry to be disagree so much but I do
100 perecent disagree.

They themselves post many posts discussing
That they may have Lyme as asking eachother
If there opinions etc.
Its a great sharing community.
Let's keep sharing and spread the education

I never have seen a post of anyone
Badgering or insisting or trying to be forceful in any way.

Just living caring suggestions and support with
Ideas to help another ill suffering person find answers

Girlie,
So if you have lost weight, I wouldn't be too surprised if that is why you have some issues with your tailbone. Maybe it just us exposed a little more and that is why you are having issues.

My throat pain is very focused in one spot, it doesn't ever go away.
If I hold my neck a certain way, I start dry heaving. I dry heave every morning. If I touch the spot on my neck, I get nausea. It's all in one little area. I can't eat food. I've lost ten tons of weight and can't gain. I'm having my cat scan tomorrow. I'm convinced it's cancer, even though the ENT rolled her eyes at me when I suggested it.