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Neighbour says I have Fibromyalgia

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Posted 6/30/2014 9:10 PM (GMT -5)
So many months ago I was talking to my neighbor at the fence...and she is convinced I have Fibroymyalgia because of the similiarity of our symptoms. I told her then, that I don't have the classic tender points (Yes, I know that some people with Fibro don't), and I have a lot of neurological symptoms. I also have a cough, but I don't have fatigue. Yes, there can be neurological symptoms with Fibro, as well, but, most people I know with fibro don't have the multitude of symptoms that I have.
I also said that I will be ruling everything out before I settle for a diagnosis of Fibro, as there is no treatment, just basically pain management.
So, then she sees my husband at the bottom of our driveway a few days ago, and tries to sell my husband on the Fibro diagnosis. She proceeds to tell him that I should call her so we can talk about it.
I told my husband he should have told her that I think she has Lyme disease. (She told my husband that she was tested for Lyme disease - but I doubt she did the Igenex one)
So, now when I go in my back yard, I'm waiting for her to see me an try to convince me once again that I have fibro.
Why do people want you to have what they have??? What's with that? Would she like it if I kept telling her that I think she has Lyme disease?
I'm not saying 100% that I have Lyme...but I definitely am going to explore it. In my gut (for what it's worth) I feel like it is NOT fibromyalgia. I just can't grasp the idea that I have this chronic pain malady that will never go away.
Posted 7/1/2014 2:52 AM (GMT -5)
You can't prevent people from talking, sad it is in some situations... causing distress you don't need on top of it all...

This is exactly the reason why we don't want lyme forum members going on other Healingwell forums trying to convince people to look into Lyme Disease. (I might even want to use your thread in a possible future discussion - lol).

People tend to be very territorial about a diagnosis, and it is hurtful whenever someone is trying to convince you that your long sought for diagnosis is wrong.

My dr is a cfs/me specialist. He is convinced that these myalgic pains are in fact a symptom  of something going wrong in one's body. That is why he tests all of his patients for virusses, bacterial infections, food allergies, leaky gut, etc etc.

You could maybe answer your neighbour that you are happy for her that she has a diagnosis, but that you and your doctor are convinced that Fibro is not what is wrong with you, that your symptoms show otherwise. She probably does this with the best of intentions, but you can't convince someone of having a certain disease if that person is not feeling that.


Trust your gut feeling, don't let anyone make you doubt it.

Posted 7/1/2014 6:28 AM (GMT -5)
or you can meet her, and talk with her about it. maybe you could find something new.like on forums..i compare street neighbor with forum...
Posted 7/1/2014 8:24 AM (GMT -5)
Fibroymyalgia is a bullcrap diagnosis and there is a usually an underlying cause for it (RA, Lupus, Lyme, etc.) So you're not wrong. Fibro patients are diagnosed b/c they can't figure it out.

That said, you could have it. But it's as a result of the Lyme or whatever you have.

Posted 7/1/2014 8:43 AM (GMT -5)
I agree! I love those commercials for medication for Fibromyalgia too....they say it is due to "overactive nerve condition"! Yes, well, why are the nerves overactive? Could it be from something else causing it like Lyme Disease? Sometimes I can't believe people accept their diagnosis without questioning things. You get a medical condition because something causes it! Whether it be genetic, viral, environmental, whatever....don't you want to get to the underlying cause of your condition and treat THAT rather than symptoms?
Posted 7/1/2014 9:32 AM (GMT -5)
Fibro is a very real condition - people really do have essentially 'overactive nerve receptors', which increases the pain they feel. Unfortunately, doctors over diagnose this condition whenever they choose to not investigate what the patient has any further. I have been diagnosed with Fibro no less than 4 times - but it never explained enough of my symptoms.

How likely is it that one person will come down with 5 or 6 different conditions all at pretty much the same time? Not very likely at all. It's much easier for an open minded person to come to the conclusion that one issue is responsible for the issues a person is having. It's just that doctors and others are still stuck with Lyme being a very rare thing -which we all know that this is far from the truth.

Some people find comfort in thinking that many others have what they have - which is why they feel the need to convince everyone that they too have the same condition even if their symptoms don't match up.
Posted 7/1/2014 2:30 PM (GMT -5)
She wants you to think you have Fibro., just like we want to think someone with Fibro. has Lyme.

I would probably just try to talk to her about other things?

Most people aren't going to be convinced by Lyme.

Margaret
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