Hellllllo HealingWell felllow Lyme headed Lymies!!
I haven't been on here for...many years now. It looks like around 5 years but I don't know because my math skills are still under re-construction, ha! I am now 23 -no longer feel like I'm 90 but mentally I'm thinking I'm still in my teens...maybe even tweens, LOL!
I have stayed friends with several people that I met here so long ago on HW--some are still the closest and dearest ever <3. A couple have moved on to heaven... I guess God decided to relieve them of their suffering. -He is The Man after all.
I am so very thankful for those that hung in there with me and even though I don't get to see them as often as I would like, they still mean the world to me, in the 'real' world <3. (Not that HW isn't, it's just not in person.
Things, (ahem LYME and it's nasty buddies), progressed down to a dangerously horrible level not too long after I was unable to post or be on the computer much.
I won't go into a lot of detail but I will say that I had every symptom and complication imaginable --from paralysis (including my stomach and gut -gastroparesis), severe neuropathy, dysautonomia, POTS, refractory seizures, allergies to most everything and all but 2 foods, MCS, to --heart stops. My body rejected a feeding tube and I had anaphylactic shock to TPN and PPN. You all know how fun that is I'm sure ;)
Mainstream medicine had no choice but to give up on me and put me into palliative/hospice care.
It was the most difficult journey I could ever have imagined, some of it I don't even remember. I guess that could be a silver lining of which I'm not fully aware :/
Thankfully that is all behind me now -by the Grace of God and who and what He lead me to, to get me this well! (I hope I'm allowed to mention God on here as much as I have)
So fellow Lymies, I'm here, in living proof, to pass on the message that there is always hope...even in the darkest of moments and during the most unimaginable physical, emotional and mental agony and challenges.
Never give up! Never give in!
And hold on to your sense of humor every moment that you can -especially if you lose your marbles!! By the way, I still have a few runaway marbles -but I'm not ready to collect them all just yet anyway
![smilewinkgrin](/community/emoticons/smilewinkgrin.gif)
:D
Much Lymie Love,
Spacie Gracie