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Posted 9/6/2014 4:18 PM (GMT -5)
Hello everyone! I've been battling Lyme and Babesia since I got my diagnosis in 2011. Things have certainly improved with the oral and muscular antibiotic injects but I have neurological Lyme so I'm currently doing IV treatment. I have a port in my chest and I do 2g of Rocephin every day; I am six months into a year treatment.

I know there are a lot of symptoms that come with the disease and I have made peace with that and learned to live with things like body aches, fatigue, etc. My main concern is that I have intermittently had strange bouts of leg weakness. I know that I can't read too much into this because with Lyme in the brain and spinal cord can cause all sort of weird things to happen. But I work 9 - 7 and the job can sometimes be physical and I worry about these symptoms interfering with work.

Some days I get numbness and tingling in my legs and feet and it can be hard to walk. I'm not sure if this will go away when I'm done with treatment or if it means anything at all. I know if I go to a neurologist they'll just tell me I have anxiety or I'm making it up so I'm not really sure what to do.

Anyone have the same issue? Suggestions would be much appreciated.
Posted 9/6/2014 4:59 PM (GMT -5)
If you aren't already, it may be good to consider Vitamin B12 injections. Lyme tends to damage the myelin sheath around nerves, and the body is unable to repair this damage without Vitamin B12.

Best forms are hydroxycobolamin and methylcobolamin. Cyanocobolamin can become toxic in large doses because of the cyano- part of the vitamin (which the body discards, as it has little use for it). Hydroxy- is just water, and methyl- is used by the body for detoxing.
Posted 9/6/2014 6:51 PM (GMT -5)
My left leg and arm are very weak now. I have lesions all over my brain so I'm not surprised.
Posted 9/6/2014 7:35 PM (GMT -5)
That's why I'm hesitant to go to a neurologist. Even if they did an MRI and found lesions, there wouldn't really be anything to do about it. So do I just get used to it?
Posted 9/6/2014 7:57 PM (GMT -5)
With time, and treatment...it should get better, don't you think?
In the meantime, I don't know what you can do to help it. Has it not improved at all over time?

I had nerve pain/weakness on my left upper side. Over a year now...but just started treatment a couple months ago...can't get IV therapy (live in Canada) - so am on oral abx.
But, mine has improved - just with time. I do light weights and use it as much as I can - even though I don't want to because of the pain.
It is stronger now...and I am hoping for a full recovery. (stubborn, I guess)

I wouldn't go to a neurologist - as he/she probably wouldn't say anything helpful anyway. May make you feel worse about it.
Posted 9/7/2014 11:46 AM (GMT -5)
yes - I have that symptom often and it's very common with lyme. Controlling the internal inflammation will help... As Razzle mentioned, B12 is good for it, there is a supplement my Dr started me on called Methyl B12, has 5,000 mcg Methylcobalamin with folic acid. You could have an absorption issue too, Curcumin will help. A plus: both of these supplements taste good :)
You may want to consider a Lyme literate Rheumatologist
Posted 9/7/2014 2:12 PM (GMT -5)
My legs feel weak sometimes, even though I walk my dogs every day. In the morning, they sometimes buckle from underneath me, and I fall.

I haven't had any success with neuros.

RTF, I will look up Methyl B12.

I didn't know there were any LL Rheumys.

Margaret
Posted 9/8/2014 6:39 AM (GMT -5)
Teragram - my LL Rheumy is in Fairfax, VA
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