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Protest tomorrow in Philly!

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Posted 10/10/2014 3:39 PM (GMT -5)
I'll be thinking of all of you.... smilewinkgrin and representing all my friends who are struggling with this insidious disease!
Posted 10/10/2014 7:30 PM (GMT -5)
Thank you opugirl. Do you know if there will be any live streaming feeds or if someone will be tweeting ipdates and pics?
Posted 10/10/2014 9:11 PM (GMT -5)
Yes, there is live feed! http://new.livestream.com/accounts/8516279/events/3478622

Don't know how to make it clickable-sorry guys!
Posted 10/11/2014 8:55 AM (GMT -5)
Thanks
Posted 10/11/2014 9:48 AM (GMT -5)
This live stream works. You can copy the link, signon livestream via facebook and share the event for others to see.
Posted 10/11/2014 9:49 AM (GMT -5)
there is also a live chat to the right so we can chat with those who are there and others around the world with lyme who could not.
Posted 10/11/2014 10:08 AM (GMT -5)
logon and show your support by adding to the numbers watching online. Again an easy opportunity to participate and stand up for yourself and those who are protesting the IDSA and raising awareness for Lyme. Even if you cant sit there and watch login and be counted!!
Posted 10/11/2014 11:41 AM (GMT -5)
If you dont want to participate in the live feed you can also show support by posting at their facebook site

https://www.facebook.com/TheMaydayProject.org
Posted 10/11/2014 12:18 PM (GMT -5)
if anyone having issues with the live feed try hitting refresh. They are offline right now cause a wonderful lyme supporter just sent them pizza and tea to eat.
Posted 10/11/2014 1:38 PM (GMT -5)
Event is over, for those who participated I hope you found it as encouraging as I did. A lot of wonderful people in out ranks.
Posted 10/11/2014 5:58 PM (GMT -5)
It wasn't bad. I do wish the weather would have been better as more people would have come but nice crowd. We'll get em eventually. At least Congress is listening to us now! Hopefully more of you can join at the next one and I'll get to meet some of you!
Posted 10/11/2014 6:22 PM (GMT -5)
Opugirl why do you say congress is listening now?
Posted 10/11/2014 6:23 PM (GMT -5)
Thank you opugirl gor geing there yo represent us.
Posted 10/11/2014 6:31 PM (GMT -5)
Hey,

I heard the turnout wasn't so good. We got to keep working on it, rain or shine, sick or not!!!

Margaret
Posted 10/11/2014 6:35 PM (GMT -5)
I have not heard the final numbers but I know the organizers were hoping for more.
Posted 10/11/2014 6:41 PM (GMT -5)
B/c the house passed the bill unanimously...that is really good news so my guess is it will go through early next year.

http://lymedisease.org/news/lyme_disease_views/house-passes-lyme-bill.html

Yea, according to the fb page I was expecting about 2-3x as many people but it was still a good crowd. I would guess around 125 but a lot of folks like myself came out later or left early
Posted 10/11/2014 8:37 PM (GMT -5)
Thank you for your efforts, Beth!
Posted 10/11/2014 8:39 PM (GMT -5)
Yes, thank you.

I'm glad the news was involved.

M
Posted 10/11/2014 9:56 PM (GMT -5)
I think it's for research.

But boy do we need research.

Margaret
Posted 10/12/2014 4:56 AM (GMT -5)
Thank you Beth!
Posted 10/12/2014 3:05 PM (GMT -5)
http://whatislyme.com/what-the-mayday-philadelphia-protest-meant-to-lyme-patients-and-their-families/

comments and stories by tjose who attended
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