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Neuropathy and Lyme Disease

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Posted 10/15/2014 12:12 PM (GMT -5)
So I am only 20 but I believe I have neuropathy from my lyme disease. all my limbs burn and constant twitching, weakness etc.. so once i get rid of this Lyme(remission) will this neuropathy still be there like permanent damage or will it be gone?
Posted 10/15/2014 12:16 PM (GMT -5)
It's very likely that you have Neuro Lyme with those symptoms, so yes, the symptoms will leave as you treat, but be sure to detox like crazy to help ease those symptoms now. It will take a while to lower the toxin load you likely have, so keep at it. It took me three weeks of detoxing to get out from under my toxin load when I started treatment for my reinfection.
Posted 10/15/2014 12:24 PM (GMT -5)
Traveler. When I go into heat or sun., my limbs tingle, also my muscles constantly twitch. I am doing naturopathic medicine to beat this disease. I am actually really scared...so could you please clarify for me since this disease turned me into a "worry case"

Will I have permanent damage such as "peripheral neuropathy" or will the nerve damage disappear once I am in "remission"
Posted 10/15/2014 12:27 PM (GMT -5)
Will treatment reverse neuropathy once it has occurred or is it permanent?
Posted 10/15/2014 12:41 PM (GMT -5)
I had serious neuropathy during my first time with Lyme -but I was also undiagnosed for 40 yrs - and it took a while for my nerves to heal after I stopped treatment for Lyme disease. It was about 2 years later that I had virtually no burning/tingling left after that.

I did have to use something to help heal my nerves, called Avena Sativa tincture - green oats in the milky stage, but many heal without.

Neuro Lyme means that the bacteria is attacking the nervous system. Nerves have an amazing rate of healing - they can completely regrow (& reroute if necessary) in 7 years! So no matter how badly damaged they are, given enough time once the infection is gone, they will heal. And it's usually not the nerve itself that is damaged, it's the lining that covers the nerve, which is why we get so many odd symptoms - the nerve stays quite irritated. So you will have to give your nervous system time to heal, but you should heal well.

I take ALA (Alpha Lipoic Acid) - Dr. H says it's a precursor to glutathione and it really helps my nerve issues. Something you may want to look into.
Posted 10/15/2014 8:37 PM (GMT -5)
I have INSANE Neuropathy at times. This past weekend was real bad. I get a migrating burning feeling from diff body parts(chest/stomach/back), to the limbs, to the top of my head. One side of my cheek will go numb and my pinky fingers love to go numb when all this is going on. I notice it is aggravated BIG time if I am stressed and something is getting on my nerves. As Trav mentions, ALA is one of my go-to's and is good. Also, very importantly...make sure you are taking a B-complex of vitamins every day as these are important for nerves. Also, Omega3 fish oil is good.

I truly believe it will heal but it is hard to sometimes believe that when youre going through it-I KNOW! Although I have heard that neuropathy is one of the symptoms that does go on after killing the infections because the neuropathy is "damage" essentially and the damage has to be un-done...but at least it can be un-done & REVERSED! I think I worry about my joint damage not being reversible though...my knee's have been killing me lately :-/

Try not to focus on the aftermath of the illness, but take control of the *now* and focus on your healing :)


xx's-Courtney
Posted 10/16/2014 3:03 PM (GMT -5)

Mister Mike said...
Trav - thanks for that very helpful info. I wasn't aware of the nerve healing powers of Avena sativa and also wasn't sure if nerves indeed could heal. Excellent post. Thank you!

I learned more than I ever wanted to know about nerves (and other things!) when my last husband had his arm amputated at the elbow in a freak accident on the job. He had only one main nerve, one small group of muscles and one blood vein still attached - 7 hours of surgery to reattach it. That's when I learned about nerves being able to regrow if necessary and the time period.

I learned about Avena Sativa when I was going through treatment the first time around. My neuropathy was horrid, constant severe burning in all extremities, random numb areas of skin, muscle spasms and sciatica that could make me cry and nothing seemed to help. As I started to heal, I began asking questions - lots of questions - about these things. We tried many things over the 2 1/2 yrs that I saw that practitioner, and I learned so very much about just how powerful herbs could be when the person knows what they are doing!
Posted 10/16/2014 5:22 PM (GMT -5)
I have also neuropathy, but not constantly. Sometimes it is better, sometimes it is like hell.

For me B12 shots have helped a lot! A 3 shot course made these symptoms disappear for 1-2week. My doc advised me to take Thiogamma for this. I do not know if it is buyable there too, it is thiotic acid.

I also have a question regarding this topic: I got a course of a mega dose vitamins & immune strenghten herbals (echinacea, gingko, thymus, hepar, ubichinon) via infusion, and my experience was that the neuropathic symptoms increased to a very high level! What do you think, could it be a correlation?
Posted 10/17/2014 8:25 AM (GMT -5)
Actually, it was most likely a herx reaction from the herbs raising the immune function - quite common actually- rather than an auto-immune reaction which indicates that the body is attacking itself as in Hashimoto's thyroiditis or Rheumatoid Arthritis. I just went through one due to starting herbs for treatments.

And I have been using the US equivalent to thiotic acid, which is Lipoic acid or known as alpha lipoic acid (ALA). It's incredibly helpful as it's a precursor to glutithione and very well absorbed and utilized by the body orally.
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