worried and afraid.

sounds like lyme syptoms in my opinion. Have you had the igenex test? This is a blood test that is more accurate than some of the others for lyme.

Hopefully you will feel better once you see your llmd.

Hi Marchcat,

This is good, that you will be seeing a LLMD very very soon. I hope you can focuss on that...

I think that I can speak for most of us saying that doubting the diagnosis is very common. Lots of us have been told that it is all between their ears, or have been doctor hopping for years... I have a positive test, have a huge list of symptoms, but sometime it still crosses my mind...

I'll try to give you my opinion on your questions:
1) There is a huge controversy in diagnosing Lyme Disease. That is why you need a llmd (following ILADS guidelines) or a LLDN and not a infectuous disease dr who is following IDSA guidlines (there are exceptions, but they are rare). This is a worldwide problem, not limited to the US. I'm in Europe, and about the same thing is happening here. Your LLMD will not doubt a diagnosis with a positive Elisa and Western Blot.
2 ) This is a 'normal' symptom, both for Lyme Disease and Bartonella infections. You don't need to take abx and herx on them in order to have those overall muscle pains. It feels like you got hit by a truck, right?
3) For me this is not the case. I have achy joints everywhere, but the intensity of the pain migrates from one joint to another. Pain on soles of the feet is typical for Bartonella infections.
4) I didn't have weight loss, but weight gain... But both are very common with Lyme Disease. Try to eat frequently, high protein foods, good fats (like coconut oil). Avocados, nuts (if you are not allergic to them) are good. Even try protein shakes if you feel that your weight is still going down.

Have you gone through the information that is under the top thread on the Lyme page 'New to Lyme? ... Start here!'?

Lyme and coinfection's symptoms can get very intense and scary.
I think you will feel much more at ease after your appointment with your LLMD.

MarieLS

I don't know how I got so sick so fast. I'm so afraid that maybe I don't even have that much time left on earth..that something is seriously wrong.
I don't want to sound like a baby but I'm fearing the worst.

Are the lymph nodes under your arms swollen? That could be the cause of the pain. Swollen lymph nodes are very common.

Mariel,
I have so much to learn about Lyme! I take magnesium baths and put a little peroxide in the bath too (read this in the forum), it helps for a little but for some reason my body feels like its going to panic mode when im in for too long..this never use to happen before.
And my doctor does not feel any swelling, he says it's "muscular"