Wow! Our stories are so similar! I too am 2 months into rocephin and was hoping to see a difference. On all kinds of orals beforehand. Do you have coinfections? What problems did you have with the PICC?

I hope we both get improvement soon! And yes, financially, the meds, supplements and nursing care - they are all breaking the piggy bank!

I am curious as to where you are getting your meds from?

Good luck...

I had Bartonella but I took an ondamed test which showed that I no longer have it. I also have mycoplasma and annaplasma. I'm wondering if the herxing is actually the doxy killing the mycoplasma?

As far as the complications go, the guy hit a nerve bundle when he inserted the PICC so I had LOTS of pain for the first week or two. Also I've had a couple of blood clot scares that ended up being nothing. Also, I got my line caught on my kitchen cabinet while I was making breakfast and it broke open! Blood everywhere! Scare the bejeezus out of me lol.

Dannarahn, how long does your doc want you to be on the IVs? Have you considered stopping? Have you had any complications?

I'm hoping somebody'll either say that I should wait to take it out because theres a chance I might see some miraculous improvement over the nxt few weeks or that I should just get back to the herbal because it's really not worth the pain and money :)

I'm herxing but only since I added doxy. I'm also taking samento and banderol as well as colloidal silver. My llmd has had me on both herbals and pharmys. Between all the pills, tinctures and IV meds, I feel like a walking pharmacy!

Oh, and I'm getting my meds from a company called QMed Rx

Wow, streaks are scary! Did you have a PICC three years ago too? What did you do for the infection?

My doc said he has a "low tolerance" for IV meds because I should be seeing results within 3 weeks. Maybe I'm just a wuss but I cant imagine having my PICC in for mich longer than 3 months. I have an allergic reaction to the adhesive and it itches so bad I literally want to tear the tape off and dig my fingernails into my skin. I've switched adhesives too and it didn't help. I'm sorry you have to have a PICC for so long. Did you try orals and they weren't helping?

My visual stuff is really tough to explain. I have convergence insufficiency so my eyes don't work well together and I constantly feel like I'm drunk pr on acid
I see constant static and I hallucinate random images in my peripheral at night. I can't look at my phone or a computer for longer than 30 minutes or I get meningitis like headache (I've also had meningitis twice).

I've had these vision issues for as long as I can remember. Maybe around 23 ywars. I'm 30. Same with the brain fog. I'm wondering if its just permanent at this point.

Cccmama, could be. I'm glad you're seeing progress. Looks like you started seeing it after about 7 weeks? That's really wonderful and I hope you steadily continue to see it!

I feel sick and limited because of this IV thing. I gratefully have energy and I want to start trampolining and exercising again. I feel like keeping my body active and continuing with the orals that seem to work will help more than not exercising and infusing everyday. Quality of life is soooo important to me and I feel so strange and even more "sick" with this PICC hanging out of my my arm. Everybody is different and everyone needs different treatment. I just feel like my gut is to get back to the orals and herbals only and start exercising again. I just hope my "gut" isn't clouded by my obvious bias because I don't like having the PICC in lol