symptoms come and go/ test results

I know one of the characteristics of lyme symptoms is they come and go, but is it normal to feel 100% some weeks and terrible other weeks? I have yet to get a diagnosis but I am going back to the LLMD on Thursday. I got the basic western blot through Igenex about a month ago so I'm hoping to get some answers on my doctor's visit. I took 2 weeks of doxy before the test. I didn't feel bad while I was on antibiotics but after I finished the 2 weeks I started getting muscle twitches, palpitations, head pressure accompanied by dizziness, and I had tightness in my chest. After 2 weeks, it went away and now I feel fine again. This has been happening since March. I always forget how terrible I feel during the bad weeks until it happens again. Regardless of my results, is there any advice you guys could give me on my visit? If every thing comes back negative should I have more (tick-borne) tests ordered? I'm sure my doctor will discuss these things with me but just in case she doesn't I would greatly appreciate any advice.

Thanks!

You're definitely not alone. Most of us have experienced something like that...the Lyme spirochete only reproduces every 22 to 36 days, very slow for an infective pathogen. Along with the wide array of multi-systemic manifestations, that is one of the reasons it can be difficult to treat and diagnose.

I felt the same way for 2 years after I had been infected with Lyme and co's, and after a 3 week course of doxy after my doc identified the EM rash, I was fine for 2 months. Then these symptoms came back,

the worst being this fatigue like you have the flu and topped it off with some sleeping pills, and your whole body feels so weak you can barely walk, and when you sit down its painful not to close your eyes

and go to sleep, and it lasts for days or weeks sometimes. That's something I've never felt before in my life, and what told me this Lyme thing is coming back. I was in the best physical condition of my life

before I got infected (again?), and feeling like this, and not being able to tolerate exercise at all was a major red flag. So I went back to my doc and he gave me 6 weeks

of Doxy. After that I didn't flare up for another 4 months. But then its baa-aaack. I had 4 more flare-ups for the next year and a half after that, before finally getting to an LLMD. Each time the fatigue was a little

worse, and lasted a little longer. I started not feeling very well in between flare-ups, and the arthritis and muscle pains and stiffness started. Since I didn't want to feel like a 90 year old man the rest of my

life I figured there has to be something you can do to get rid of this thing.

Thanks for the responses. I copied this from my first ever post (not much has changed since then except some symptoms have gone away and I've had some new ones:
So here is some of my story. Sorry if it's too long.
Late Fall 2013 went camping. Woke up next morning with 3 small deer ticks attached to my upper left thigh. Removed them with tweezers. Never noticed any rash. Was not that familiar with Lyme at the time so didn’t think much of it as I’ve had many ticks attached in my life time.
In mid winter 2013 developed a small ringed rash on my upper right thigh. It was a series of small nickel-sized rings that spread up my thigh into my groin area. Later the rash appeared around both my armpits. Thought it may have been ringworm from girlfriend's cats' scratches. Applied antifungal cream, rash went away in 2 weeks.
Feb-March 2014 started having moderate headaches that would last about a week at a time. Mainly onesided behind left ear but sometimes migrated around whole back of head. Headaches would not go away on their own, had to use ibuprofen. I began experiencing visual disturbances: I was seeing after images of moving objects and visual snow. The hardest symptom to deal with was the constant dizziness. I felt like the whole floor was moving and tilting when I walked. It was never so bad I couldn’t walk but definitely made me feel uneasy and a little frightened.
Late March 2014 went to primary care doctor. Was referred to get an MRI. At that time began having panic attacks at night, heart palpitations, insomnia, and muscle twitching. At night, I felt like there were vibrations and energy surging through my whole body. It felt like there was an engine running inside me mostly when I tried to rest. I had a constant twitch above my left ear; bad enough that I couldn’t sleep on the side. Also, I had twitching on my lower eye lid for weeks. I couldn’t feel it but I could see it in the mirror. During the day at work my hands and feet would get ice cold and I would get pressure on my temples and top of my head. Overall, I felt like a different person. I developed a lack of drive. I just wanted to make it through the day.
MRI came back negative other than a mass in maxiallry sinus. Referred to ENT where a CT of the mass was ordered. Doctor wasn’t sure what it was so he ordered surgery to remove it and straighten deviated septum. Turns out it was a benign cyst. After surgery my symptoms were even worse. I began experiencing depersonalization (this is by far the worst thing I have ever experienced in my life) I felt like I was looking out someone else’s body. When I looked at myself in the mirror it felt unfamiliar. My arms and hands didn’t feel like they belonged on my body. If you haven’t experienced this there is no way you will understand. At this time I really felt like I was losing my mind and everyone I talked to seemed like they thought I was overreacting especially my doctor. I am a 32yr old runner, bicyclist, and hiker. I have always been a healthy person so I knew something was seriously wrong.
I went back to PCP. She was determined it was all ANXIETY and gave me klonopin to help me sleep (it did help) and Celexa for anxiety. I was reluctant to take these medications but decided to give it a try because I couldn’t take anymore restless nights. No matter how much I tried to get other explanations, she was determined it is all the ANXIETY. I do believe I have anxiety because of all the crazy symptoms but the symptoms came first. If you were experiencing the things I was going through you would have anxiety too.
Fast forward to now. I’m currently better now than I was for a while but I’m still experiencing an array of symptoms: the dizziness never goes away, I see floaters everywhere now, It’s hard to focus on books and computers. Lines in the walls look like they are vibrating all the time, I feel strange bubbly feelings in my shin area on both legs (like there is a little bubble moving around under my skin) It sometimes feels like I’m walking through spider webs but when I try to pull the webs off nothing is there. My arms feel heavy at times, I get fatigued more easily than I used to. Every time I think I’m feeling almost completely better the symptoms will come back. The dizziness still remains the most troublesome symptom. I have changed my diet and taken a few supplements which I think have helped. I avoid alcohol because I began noticing I get extreme hangovers if I drink like I used to