How are you surviving financially?

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Girlie

Forum Moderator

Joined : May 2014

Posts : 48577

Posted 12/1/2014 1:44 AM (GMT -5)

Carolin - that's a long time to be suffering and not know the cause.

How is your treatment going? Have you been on antibiotics for 4 months or are you doing herbals?

Do you have to travel far for treatment? Are you in Ontario? I may have communicated with you in the summer...

Ginger3166

Regular Member

Joined : Nov 2014

Posts : 100

Posted 12/1/2014 2:06 AM (GMT -5)

It's so sad to hear so many people in the same place I am . We struggle everyday to pay bills and keep our home. Like all of you we are in pain, sick and in some cases like me, and some of you, not getting the treatments we need because of money. Being so sick is bad enough. I've lost most of my life to this illness (tick bite 25 years ago) and should not have to worry about losing my house or putting food on the table on top of it all. Most of our money has gone, due to job loss , my illness, 22 doctors and 6 hospital visits, and My not being able to work. Don't think I'll ever get better . Can't afford treatments. There should be more help for people like us. Nobody should have to suffer like this.

Razzle

Veteran Member

Joined : Aug 2007

Posts : 4415

Posted 12/1/2014 3:26 AM (GMT -5)

This disease is a Money Pit. It literally sucks all life out of us, and all our money along with it.

I've been sick since I was bitten at age 4. Took over 100 doctors, and thousands of dollars to get diagnosed. Worked after college graduation for almost 3 years, but then was in so much pain I could no longer function once I got to work (car rides made the pain skyrocket in severity).

Applied for SSDI, was denied twice - they claimed I could work and that I did not have enough work credits to qualify for SSDI. Unfortunately, none of the doctors I had seen supported my illness - they all thought I was faking it (I wasn't - finally got confirmed that I had RSD/CRPS). I did not know I had Lyme then.

Got lucky with a wonderful Husband just before this, and he tried hard to provide for us financially. He was "downsized" last year and we've been limping along on credit cards and much less take-home pay even than we had when we were barely scraping by.

I'm really scared because we have no idea what will happen when his work contract ends next year. And he's got chronic illness too (not Lyme), so fulltime work for him isn't easy either.

The stress of financial problems from this disease alone is enough to kill us, never mind the actual disease...

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