Viking Warrior Woman - I moved your post here to get more views.

Viking warrior woman wrote:

"Thank you very very much for any help. I have a long story with a daughter that has all the symptoms of Lyme. Now recently diagnosed with Ulcerative Colitis which is accelerating now in only a short time of treatment by the Gastroenterologist she is going to (didn't want to hear anything about past symptoms, three ticks we removed from daughter's scalp when she w 9) they are increasing her meds to large doses of heavy steroids."

Thank you so much, I will email the site and names you suggested. My daughter just picked up her first prescription for steriods prescribed by the Gastroenterologist in Portland. I am aware of it being contraindicated for Lyme carriers. Once again, I am butting out for a while she is 25 and making her own choices. But if this ulcerative colitis and the other Lyme symptoms she has accelerate quickly and dangerously, then I still need to find a Literate Lyme doctor near Portland, Oregon. Thank you again very very much.

Post Edited By Moderator (Traveler) : 12/4/2014 12:35:55 PM (GMT-7)

VikingWarriorWomanf, there are other options to control and treat ulcerative colitis such as herbs, probiotics, anti-inflammatories, Aminosalicylates, Immunosuppressants, and Corticosteroids.

Did the doctor tell you how bad the ulcerative colitis is? If it is very severe, Corticosteroids could save her life, so please don't shun them just because they are contraindicated for Lyme. If her life is not in danger then steroids should not be your first line of defense. Instead consider other means that have less side effects. Her health will thank you for it.

By the way, steroids DO NOT cure ulcerative colitis. They treat the symptom and not the problem. You will still need to address what is causing the ulcerative colitis via diet changes, toxins, bacterial load, etc.

Well said Traveler. Her daughter is so lucky to have a mom that cares so much for her. Well, I guess we all care like that for our kids, even if they are a pain in the butt sometimes ;-)

Thank you all from the bottom of my heart. I appreciate your taking the time to reply/share/refer. I am butting out for now,meanwhile Kelly just finished her first Rx for steroids. Of course we were expecting strong side effects but she had night sweats severely again, her stiff, popping neck is the worse it has ever been, .....meanwhile, I have saved all of your replies/information to give to her in a month if her condition worsens. She is 25, wants to make her own choices of course which I must respect and will. I am not offended b the first post that I received to butt out. He got to the point, as very direct,.......just lacking some diplomacy which I was over quickly. I appreciate that he did take the time to respond. Thank you all again for your care, concern, and taking the time to post and give me important information. Thank you especially to hwtraveler@healingwellnet who was so helpful, did give me a list of Lyme literate doctors near Portland. She suggested Bartonella or Babesia to look closer at that have a lot of the symptoms over the years that my daughter has. I just had major foot surgery (my 6th) and am stuck in bed, have to not bear weight on this foot for three months. So right now is a good time for me ton be on my computer,research, becoming educated. Once I recover,....I am going to join in the fight..become a Lyme Warrior. I practiced as a Registered Dental Hygienist for almost 30 years. In that time I had 14 patients over the years that I pushed to get second opinions for conditions they were living with, what I believe were misdiagnosed. I had the advantage to see my patients every 6 months, sometimes 4 months,....and had many many patients that I had been seeing for years and years,....In knew them better than their doctors,..and I noticed changes in them because I knew them. My patients trusted and respected my judgment because they knew how much I cared and was dedicated. Anyway, I have kept 14 poignant letters written to me thanking me for pushing them to keep looking until they found the answer, and they did, and where, to who, for what and the suggestions to be referred to the right place ending up that they had been misdiagnosed, some lived in misery for years because off it. I live in Brookings Oregon, we used to live in San Juan Capistrano , CA for 26 years,..had a Dental Practice in Mission Viejo CA. My daughter had the three ticks embedded in her head, one right at the base of her neck, the other two right behind each ear. She had "camped out overnight" with my mom's two big dogs,..........this was in Rolling Hills,CA on the Palos Verdes Peninsula. I found an article with a copy of a bulletin issued by (is it Vector Control/government issued) warning about ticks discovered, tested positive for carrying Lyme, several other diseases, and then the bulletin warned about preventing tick bites, etc. I think that Kelly was about 8 to age 10 back then. My mother removed the ticks, but remembers the event clearly,....my other daughter who is 6 years older than Kelly was also there, remembers the three ticks clearly as she was shocked and grossed out.

Brookings is a nice area. I haven't been down there for a long time. My daughter would like living there while going through Lyme disease since the coastal air is so relaxing for her.

I hope everything works our for the best!