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Posted 12/18/2014 8:36 AM (GMT -5)
I have major insomnia- I can fall asleep at night with melatonin but wake only a few hours into it and have to take more. Then I'm up by 5ish and can't get back.

When I try to nap during the day I start to get palpitations and cannot fall asleep- if I do drift into somewhat of a sleep state (which is basically never) I get up feeling groggy and with my heart racing or get the twitches/limbs shake before falling asleep.

Tried Klonopin which didn't really help and then temazapam or ambien which still would only give me 5 hrs of sleep- after waking me up for the first chunk of two or three hours.

Does anyone else have this? I feel like my symptoms are worse big every day as I wait to see an LLMD. I'm worried that if this is Lyme I will have such a long road ahead because I have MTHFR677 and exposure to mold/light candida. Please feel free to provide any insight. Original med in CA suspects Bart as I'm waiting for further igenex. Tested pos for igg but PCP won't treat bc she says it's not "active" in my blood
Posted 12/18/2014 10:47 AM (GMT -5)
hey Pmgonza,

insomnia is a symptom that has stuck with me from the get go. I've tried Melatonin, Valerian root, Ativan, Klonopin, Ambien, Tramazadol, Valium, and several others and at best, I get a solid 4 hours. I have Babesia which is likely my major problem and I've just kind of gotten used to this.

No idea what state your in but......I had to do a little travel for work to a neighboring state where Medical Marijuana is legal and a friend had a prescription for it. The two days I was there I tried a little each night before going to sleep and i got a solid 9 hours without waking once. Deepest and longest sleep I have had in probably a decade and i took absolutely no pharmaceuticals. Oddly enough, I also Herxed. This experience made me want to pick up and move to another state just so I could get some relief.

I hope you find something the helps you and I can so empathize with you. Sleep is something that we kind of take for granted until it's not possible and man do i ever miss it.

Good luck. I'm sure some other members will chime in with some other things for you to try.
Posted 12/18/2014 11:26 AM (GMT -5)
Insomnia is a common and major lyme symptom. You are also getting heart palps. You could very well be low in magnesium. Research magnesium deficiency with lyme. Its extremely common and the cause of alot of the symptoms.

You have to take a good brand that is well absorbed. I'm telling you it could work like magic. Just be careful if you have any kidney problems.

Lyme strips us of magnesium, I don't know who or how but magnesium has helped me so so much.
Posted 12/18/2014 11:46 AM (GMT -5)
Springjean, I take magnesium citrate. Is there another type you would recommend? I take about 1200 mg a day
Posted 12/18/2014 11:49 AM (GMT -5)
My sleep and daily energy constantly charges through out treating lyme.

If I'm too wound up to sleep, I watch tv till I'm sleepy. Right now 3 valerian (300mg total) and 400mg magnesium glycinate helps - usually.

3 weeks ago i slept 9 hrs, very rare for me. Next night couldnt sleep a wink, since I was not tired. Day after i was a zombie.
Posted 12/18/2014 4:56 PM (GMT -5)
My sleep used to be just as you described, Pmgonza - never sleeping more than 5 hours a day and no napping!!! I tried tons of things while infected -melatonin, valerian, ambien, Trazodone and many others - but it wasn't until I was treating adrenal problems that my insomnia has left. I now sleep 7 - 9 hours a night, every night, with occasional nights where I don't even wake to run to the bathroom at night!! turn That's new!! smilewinkgrin
Posted 12/18/2014 5:35 PM (GMT -5)
Many things can cause insomnia. One often overlooked cause is a deficit of betaine (BH4). If you also suffer from depression or mood swings, BH4 deficit can be the culprit. Lyme patients often struggle to maintain adequate BH4 levels.
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