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joint pain is killer.

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Lyme Disease
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Posted 1/19/2015 1:05 AM (GMT -5)
I am no longer testing positive for lyme.
So to my doctor I am "negative" lately I am having severe pain in my knees, elbows, jaw, and neck. My muscles are killing me!
:( :( I also randomly get this feeling in the back of my head like pressure. It's so scary.
Since I'm "negative" for lyme now..should I be concerned? Even after my doxy regimen..I still never felt completely better. All the doctors say symptoms may linger after the infection has cured. I am always so scared! My anxiety doesn't allow me to function. What do I do?
Posted 1/19/2015 1:45 AM (GMT -5)
I think you need to see a lyme literate doctor. Hopefully someone on here can help you. You can have a negative test result and still have lyme.

The symptoms are active infection. my symptoms of joint pain went away with treatment. So it's probably not just going to go away on it's own.
Posted 1/19/2015 1:52 AM (GMT -5)
Lyme pickle,
I read on the new to lyme post that antibodies will still show up on the blood test within a year of getting infected. Shouldnt I be still testing positive? I did test positive for Lyme in august and got only a month of treatment. But with new infection I thought that would be enough?
I'm trying not to panic thinking I have anything else. I know it's natural for someone with lyme to have bad health anxiety. I am a great big mess.
Posted 1/19/2015 5:07 AM (GMT -5)
That is not always the case, some people have lyme in full swing and yet they test negative. Diagnose should be based on symptoms and since you still have them, you probably still have the bacteria making a mess. Its a worn out advice but try finding a LLMD
Posted 1/19/2015 7:57 AM (GMT -5)
Right now I wish I could afford an llmd..I'm a college student making barely everything, and my mom is a single mom with a family of 5. We've been doing research to try finding someone we could afford but man its hard.
Right now I go to my doctor a lot who thinks I'm suffering from hypochondria since all my test for everything he has tested me for are negative. So now he treats me like some crazy person, but I'm not my body is legitimately killing me and I can't get comfortable no matter what I do
Posted 1/19/2015 2:36 PM (GMT -5)
marchcat - That makes me angry - when I hear Dr's treating Lyme patients like hypochondriacs! But, you're not the first one, and won't be the last. It happens frequently.

You could go on an herbal treatment for lyme.

Hoping someone will chime in with some solutions for you.
Posted 1/19/2015 5:42 PM (GMT -5)
I would love some herbal solutions! Willing to try anything! My jaw is killing me along with my neck today. So horrid!

I would like to know things that work for this discomfort as well!

Thank you
Posted 1/20/2015 2:43 AM (GMT -5)
Sayadina,

thank you for those suggestions! I will definitely try them. I have heard many great things about cats claw! Do u take any vitamins for joint health too? I was wondering if that would help too. Hot baths have been helping me get along these bad days..but I can only stay in the tub for so long. :\
My doctor just shrugs off my pain and tells me to take naproxen. It doesn't help!
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