For successful Lyme members

I pretty much am a success story at this point - just posted a thread 2 days ago!!

Anyone please that can add their successes to beating Lyme. It's discouraging. Need more to encourage hope. Thanks for reading. 🌺

I've been saving links to success stories as I find them.

Here are some from this forum:

https://www.healingwell.com/community/default.aspx?f=30&m=2224155

https://www.healingwell.com/community/default.aspx?f=30&m=3091488#ttop

https://www.healingwell.com/community/default.aspx?f=30&m=3286041&p=1



And, here are others from elsewhere:

http://brittanygoff.hubpages.com/hub/lyme-disease-and-babesia

http://www.cfsrecoverypath.com/tools/lyme-disease-recovery-stories-oh-yes-its-possible/

Success story !!

I came back because I just saw a story about some famous model who's been treated for the past three years but still struggling with lyme. I wished I could let her know about alternative ways to supplement our treatment.

I was diagnosed with lyme, was one of the "lucky" ones with the classic bulls eye rash, tested positive and also tested positive for erlichia (spelling?)...but didn't start heavy duty treatment right away as I was nursing my daughter and didn't want to stop. (I hadn't known how dangerous lyme would become or even that I had a possibility of infecting my daughter according to some).

Once I started antibiotics (at a point where I was no longer able to read/was having word retrieval problems and severe pain), the symptoms would go away. My doc would take me off the antibiotics and the symptoms would start again. This occurred for 3 years with multiple different antibiotic combinations, coupled with herbal sides of teasle, cat's claw etc... anything I thought might work.

Well, after 3 years, my lyme doc finally stopped taking insurance, and I thought to myself, there has to be another way, I'm going broke. :) Once in the doc's office another lymie patient mentioned something about changing my diet to get well. My more mainstream doc had spoken about this as well and said it seemed to help some feel better, but was someone pushed the antibiotics. I followed because when I was on them, I did feel better a lot of the time.

Well, I started with green smoothies which supposedly alkanize the body the same way that alkaceltzer gold stuff supposedly does for herxes. I felt a little better, but still much difficulties reading and terrible aches and pains. I then read about getting rid of foods that cause inflammation in the body. That was a lot of milk products and grains... basically think the paleo diet.

As soon as I eliminated all gluten (and it takes awhile to learn where you can get sneak grains and gluten accidentally in your diet), I felt a billion times better. I could read again, I didn't have to pop tylenol every day for aches and pains. Two years later I still have to follow the grain free diet. I'm okay w/milk products (thank god) and drink home made kefir-- (probiotics) every day -- hoping my stomach might get built up enough that I can eat grains again with no problem.

I wonder if all the antibiotics got rid of the lyme but really screwed up my stomach lining or the good bacteria in my stomach... or if I still have lyme, but the lack of sugar and inflammatory foods in my diet just don't let it blossom the way it was...

I guess I'll never know...but there are success stories!!!!!!!!!!! [img]

I notice that you mostly post in another forum, Pat. Do you have any questions that we might be able to help with?

Hi pat tall,

I consider myself a successful lyme story. That being said, I do still have problems here and there and definitely have residual problems. But I am me again and living life to the fullest!

My husband and I both broke out in what we thut was poison something rash in 2000 after a day of gardening. Mine though had black tips to the blisters. I found out many years later when I saw an identical pic that it was most likely tick larvae. Anyway, I would go until 2009 before I was diagnosed and my husband until 2011, both exhibiting strange symptoms beginning in abt 2005.

So we both had for a long time before diagnosed. When u have that long, I don't think it is possible to totally eradicate it but like any other disease, if you can get it under control and stay ahead of it, you can live a happy life.

For me, it was 2 1/2 years of every imaginable antibiotic and since then herbals like cats claw and many many supplements. My husband has babesia and is still battling to get under control. He was much sicker than I was. Both of us suffered terrible anxiety, depression, and many other problems.

I think the turning point for me was letting go of the anger and slowing down and living each moment in the moment. Especially now that I am feeling good, it is so nice to see the joy in each moment of each day, knowing what I went thru.

We have a wonderful dr.that really listens to our symptoms and treats the whole body. But believing in yourself despite what other drs tell you and allowing yourself the time to get well is so important. I never thought I would ever feel this well again so it is possible!

Pat Tall said...
Thank you Traveler. I have an ill friend that had all kinds of strange symptoms. As a last resort, the doctor decided to test for Lyme. She has seen many many doctors . She held off and finally went and had the draw. Well you can guess, -- it came back positive for 39 and 41. We both have been reading and reading all we can. Got Dr. Horowitz book and reading about the different protocols.

She does not recall any tick bite nor that rash and is shocked about it all. I'm offering support as best I can. As you see I'm on the GERD forum pages and never thought that Lyme was on the forum until I entered into search block. It opened my eyes and things seem to make sense when I think about all the strange (kinda textbook) symptoms.

We will be asking questions. Thank you for that. This is so new and shocking. Can this illness be successfully treated without antibiotics? That is her current concern and wish. She said she had lots of problems with antibiotics and will avoid at all costs. Even with probiotics.

Thank you Traveler. BTW, I put in Lyme in the Google alert. It is shocking what shows up in my email on Lyme from all over the country.

Another concern is can it be passed on to others through blood, saliva, secretions, coughing? It is not clear and that is what initially brought me to your topic. Thanks

I am currently like you, shopping around forums, to see which forum has the symptoms that points to the mysterious diseases your friend/or yourself is fighting. I finally landed here, where most of the symptoms matched, but havnt been tested due to symptoms that the doctor believes to be something else(genetics, psychosomatic)

LITC - that is exactly why I'm still here. My own suffering just had to count for something and it has!! It has!! I have been "paid back" 10 fold with love and caring from those that pass through this forum. I reach out to those in my own community that find me, and anyone on any other site that wishes to talk with me.

It doesn't have to be that way - but that means that WE have to do something about it by donating some of our time back to this cause. There will be tons of things that can be done for a very long time.

Pat Tall
Yes, these infections can really be treated without abx - I'm one success story of many. I treated with abx first, was considered an abx failure, then -after a break to detox - I started using herbs and have healed from a 40 plus year infection using only herbs & acupuncture - then I got reinfected and have been healing again with herbs only. I may even be done with my second set of infections!! I've just stopped my herbs to find out this week! And there are several different herbal protocols to choose from too! There are Naturopathic doctors that are Lyme literate that can help people heal from these horrid infections as well.

While all the research is far from over, at this point in time we have scientific evidence that Lyme can be - but not always - be passed from blood, organ transplants, and in make and female sexual secretions. I have not seen any scientific articles about it being passed from saliva or coughing - this is a bacterial infection, not viral though, so I doubt it can be passed by coughing.

If there are any scientific studies that you or your friend wish to see, just ask!! Usually one of us can find it - we have some pretty good 'citizen scientists' here!

And if you would, please extend a personal invite from us to your friend to come join us!! While we don't have all the answers, we definitely do our best to help each other and provide solid, credible sources of information.

And thank you for reaching out for your friend. You have no idea how many people I alone have seen pass through this forum being heartbroken because all of their friends have left them because they got so ill. I'm one of those too. It means a lot to see that people like you are still out there!!