Best Bartonella Protocols

Our 13 year old daughter improved to 80% after 2 years of multiple combo abx for IND lyme/bartonella.

Maintained 80% after being weaned to Buhner's bartonella protocol for 8 months. Improved to 99% almost immediately after adding the herbs for Buhner's babesia protocol to the bartonella protocol. She has maintained 99% for 1 year at low 1/4 dosages of the combined protocols. All of her physical, cognitive and psychological bartonella and PANS symptoms have resolved. She is left with some (level 1-2/10) residual motor ticcing.

LymePickle said...
Rowing Mom, what is motor ticcing? Are those the motor like tapping sensations that are similar to vibtations?

Tourette's-like symptoms. A diagnosis of Tourette's also involves vocal ticcing, which at one point our daughter was experiencing as well, although thankfully those have resolved with treatment.

A tic is caused by a sensation (tingling, itching) in an area of the body that won't stop until the tic (eye blink, mouth stretch, neck twist, arm pump, whatever...) is performed. The tic can be consciously delayed, but this will only intensify the sensation until a point where it can't be contained any longer and the tic has to be performed.

Thanks for the explanation rowing mom. Although I don't quite understand it so I'm trying to see how some of my symptoms relate to it. So you are saying there is an urge or tingle that makes the person want to move their body. Could vocal tics be like stuttering or repeating the same word?

One time my eyes automatically blinked all by themselves 3 times. It was involuntary, this was back in February of last year. Would that be a tic? Also I have vibration sensations and when laying down I have motor like tapping sensations, but they aren't that intense anymore but still there. Is that a tic? Or I had a full body flinch while laying down where I think suddenly out of no where I felt my whole body jolt. Maybe that is a tic?

Any other successful Bartonella protocols & treatments?
Thank you for sharing, rowing, I hope more will chime in.
I really need more input of people's successful tx.

astroman:

Are you saying that the Houttuynia made it difficult for you to detox? Why do you think so? Do you think it was killing too much bacteria at once OR do you think in caused your body to not be able to detox properly?

Did you try to decrease your dose at all? I bought the powder and I am tincturing and now I'm nervous!

Did anyone treat for Bart through their picc line (iv meds)?
Okay, Houttuynia & A-Bart sound like strong contenders.

I do have the subcutaneous nodules along my extremities.
I have tons of them.
They are very sore & I know they are Bartonella.
I've had them for 20 years or more- is it possible to ever get rid of them at this point?

Is this the calcification of tissues that you are talking about?

If I could live happily & peacefully with these stupid bugs, I would resign to that

Girlie- I have had one on my left wrist for years. It's hard and attached to the bone. Since my early twenties, I was unable to do do push ups b/c of where the nodule is on my wrist.

Early 30's I was already in a lot of pain & tried massage. It felt okay afterwards, but then I was dying of pain for the following two or three days. The therapist would try to massage these nodules out & said I'd need to keep coming back to get them completely worked out. Well, I went back one more time & felt so awful, again, that I didn't go back again. The nodules were along my arms, legs & spine.
Since the acute lyme infection in June 2013, as per Stephen Buhner's recommendation, I tried another massage in August 2014, with reservation.
This time, the nodules were one on top of the other all over the front & side of my thighs. Nodules also heavily hips & butt area & still the arms, calves,back.

The therapist mentioned that these were very odd places on the thighs & she hadn't ever seen them like I had them before.
And, yes, massaging made me miserable again, except this time for about a whole week afterwards.

Can anyone else relate to this?

PS. I understand lactic acid build-up & drinking lots of water afterwards, etc. with massages, but what I experienced was not that.

Post Edited (Usedtogarden) : 2/16/2015 7:43:50 AM (GMT-7)

I believe Chapelle used bactrim DS and Zithro for her bart.
And we know it worked for her.

Maybe she will chime in.

usedtogarden- you asked if I am better? Do you mean - healed, or somewhat better?

I have improved since starting treatment in July.
In fact, the past couple weeks, I think I've gotten a bit more better.

But, not symptom free, not close either.

My LLND just recently prescribed Tinidazole - I'm wondering if that's why I've noticed something in the past couple weeks. I pulse it two days per week only.

He mentioned Rifampin and doxy if he feels I'm not progressing enough with the Buhner bart herbs.

I'm a little concerned about Rifampin.

usedtogarden - which ones are the sulfa drugs?

I'm taking rifampin 600 mg at night, zithromax 500 twice a day and it is kicking my butt majorly. I have to back off till I can get the herx to pass, to much pain and flu like symptoms. Don't recall after the very first bad herx in the beginning of treatment having a herx as bad as this, I guess we are killing some Bart.

I'm taking rifampin, minocycline, and azithromycin for bart. And it is working very well!!! I won't stop these pills for some time now. I can sleep like a log yet again! Really the difference is like day and night in my bart symptoms.

But sadly I noticed my brain floating and felt a small pressure in my spine today. I think it is That darn lyme! Argh it is frustrating me, I used the cured twice protocol 3 times and it should be done by now! Oh well next time I will use the Dr.Burascano protocol ceftin and more ceftin!