REALLY scared

I'm sorry you're faced with this alone and don't blame you for being scared. You have us for backup, so keep us posted on how you're doing. I wish you had someone to come and help you out. A single guy with Lyme would likely want you to help him! You wouldn't need that! LOL I hope you'll improve with her plans for you.

Margaret - You're going to start one abx at a time - low dose, arent you? Maybe if you start really low, and see how you feel...you can manage the herxing.

When are you starting the protocol?

Girlie, theoretically not, but it's up to me, so I think that's a fabulous idea. I'm not sure when I'm starting, I need to get a bunch of junk out of my house, and get a temporary housecleaner.

Thanks, IHL, that's nice!

I've been really sick. I'm not sure why; I've just been really sick.

IHL, I have a book suggestion for you, but I'm too embarrassed to post it, ha ha! It's a "female" best seller, if you know what I mean? I think the movie just came out. Hardy har har.

Actually, I'm entirely kidding (as in 100 %), bc I personally thought the book to which I am referring is incredibly misogynistic.

I think I'm going to try Girlie's suggestion, but the thing is Girlie, I'm already going really slowly, and I still keep herxing, no matter what!

M

Margaret, I understand your fear and hesitation. I, like you, am very, very sensitive to anything that I take, be it oral, transdermal, or intravenously. Even saline or contrast solutions need to be administered slowly or else it hits me hard, where I puke, almost faint, and get extreme anxiety.

So with this in mind, I ask that you proceed with extreme caution. I can't understand the mentality of your doctor by putting you on so much knowing how sensitive you are. Perhaps he/she is not seeing any progress and wants to make a full-on assault?

In any case, there is a belief by some medical/research professionals that combining different drugs or treatments has an advantage because it overwhelms the bugs' natural efflux pumps and protection mechanisms. Would this be the reason behind this treatment?

Would he/she consider starting you at the smallest (child) dosage possible to check for reactions or side-effects?

Anyways, don't forget that it is your body and YOU must always be in control. Harming you while killing the bugs won't do anyone any good. Remember that "slow and persistent" wins the race (or something like that).

I totally agree with Girlie. Just take one thing at a time so you know which one is doing what to you. I too am very very sensitive and that's how I approach things. If you take 4 new things at once and have a bad reaction you won't know which one is causing it.

Good luck Margaret. I feel for you being alone, but I know you can do it. Take care.

Thx. for your votes. I'm already doing the mmonolaurin and the baby azithro syrup, but the thing is, do I increase the dose, or start a third thing? It's going to take me years, sigh! M

It's nice to see you again here, Margaret!!

So sorry you've been struggling so much. (((hugs)))

Dare I suggest that you and your doctor use Horowitz's 16-point differential diagnosis map to help you figure out what might be impeding your healing?

And, I completely agree with taking baby steps and fully appreciate your concerns about healing taking forever.

Heck, I herxed after my first drop of Banderol but was able to tame it with 4 rounds of the Cowden detox tinctures. Can't say that after getting up to 3 drops each of Banderol and Samento....I had the most intense herx I've ever had and completely stopped the protocol until it ended (I am still taking my abx)

I just re-started the protocol yesterday following *my* schedule.....1 drop each of Banderol and Samento for the day and will be holding at those doses for a few days.

My plan moving forward will be to add 1 drop per day of one of the anti-microbials and waiting a few days before adding a drop of the other one.

I might be retired by the time I'm done but at least I won't kill myself in the process lol

Oh, yeah....detox, detox, detox!!!! :)

Be very careful Margaret, I also just started back on anx and went full force and started crashing big time. I feel better and now I am starting slow and if my reaction is to strong, I drop down a dose.

Hope you can get thru this easy and please keep us updated. I will definitely pray for you.

Hi Margaret

I'm sorry I haven't been posting much lately... (too much going on and not feeling well). I've been reading though...

If I were you, I would go very very slow. Starting one drug at a time, building it up very slowly. You've had plenty of nasty reactions on several drugs, at least that way, you'll be able to determine which one is causing a possible reaction. I've had protocols in the past that really scared me, but as you know, my dr is really careful and has the brain to not put his patients in danger. I don't know what reputation your dr has... At least I could rely on that.

Just a remark on one of the abx: Rifampin is an antibiotic that needs to be taken following a very regular regime in order to prevent resistance... But it's said to be a rather weak antibiotic, but very efficient.

I hope you'll find someone who will help you clean your house, but please try not to stress too much about it, you have a lot of things going on...

And 'the' book... Such a waste of money... I bought it right at the beginning of the hype. I saw that cartoon, wait, I'll try to post it later on... It's really funny...


MarieLS

But she didn't add anything to detox. Did she talk about detoxing, give you advice on what to take? Or are the detoxing 'agents' in the supplements you're already taking?
Are you still on Burbur?

Ok, you folks are making me laugh; you are SO gung ho!! Trav. you especially made me laugh. I felt like you were practically jumping up and down.

Deeja and others, believe it or not, I really like this doctor. For one thing, she's an integrative doctor, and she does use herbs like Artemisinin etc. etc. She's in NC, which is good. The other LLMDs in NC don't have such good reputations. Her reputation is steadily growing, and so far, I haven't heard anything bad about her. Plus, she's really nice. You know how doctors are; they tend to push aggressively.

You're right about the detox; she didn't say a lot about it, until I prompted her. She personally likes activated charcoal, and she thinks the FAR infrared saunas are great. I have a sauna, but I got really slack about using it, bc it was giving me migraines, plus it was such a drag to get everything ready, like in the sauna, clean everything etc. I now realize I should have drunk more water bf getting in the sauna, bc I wasn't sweating.

She said that by far the best detox was to drink lots and lots of water.

She's also working on my immune system. She bumped up my Beta Glucan, and I think I'm going to make an appointment with my phlebotomist (if I ever get around to it) to see what he thinks about the IG test result.

So yes, you win. I like Girlie's ideas and Blue Green's idea of adding or bumping up ever 4-7 days.

cd, Samento and Banderol worked great for me, until I started getting diarrhea. Then, after that resolved, I tried again, and I couldn't stop herxing, plus they weren't helping me out as much. Since I now have an LLMD, I'm going to try her system.

Deeja, except for walking every other day or so (I'm in a fabulous neighborhood for walking), and occasional trips to the grocery store (which exhaust me), and the recycling dumpster stations, I'm practically housebound as is.

Persephone, I've tried asking about the grocery-delivery system, but none of the four grocery stores in this town does it. By four, I'm including WalMart, ha ha!

As for that "Grey" book, I innocently bought it at an airport bookstore, having no clue what it was really about, and as I started reading it on the plane, I noticed the guy next to me was impolitely staring at the book. I was trying to remember why I only got a third of the way through it, and I realized that it's because it promotes horrible negative stereotypes about women (apart from all her ooooo's) Basically it depicts an abusive relationship, since he not only beats her, he tries to control her every move. The fact that it's so popular is even scarier. I think the spoofs have got to be better than the actual book.

Persephone, of course you can talk about the cute delivery boys. When I first met Marie online, I told her that I had flown on a Belgian airline, and the stewards were unbearably cute. They were both blond. And the captain's name was Captain Lemon, so my friend said something about "Captain Lemon and his lemon drops."

So NOW, the big question is, what do I do first? Ok, so I'm going to choose one thing I'm already on. And then after 4-7 days, what do I do, bump up the dose or add an additional substance?? That question has always had me stumped, ha ha!

Oh, and Marie, I'm going to reorder Burbur, but I think I'll have to basically drink a bottle a day, which gets a bit expensive, heh? Marie, I hope you let me know a bit more about what's going on.

IHL, I hope I didn't shock you.

Thanks all, for your opinions and for pulling for me.

Margaret

Margaret - re: "increase the dose...or add the third thing" - Rowingmom's advice to me when I was starting some Buhner protocol tinctures to get everything in on low dose first, then slowly....SLOWLY....increase each one - one at a time.

(Instead of increasing the first one....then starting the second, etc.). She said it was better to be on a low-dose of them all, rather than getting to the full dose of one.
But, that was with herbal tinctures....not antibiotics.