I've lived with this for almost a year now; it hurts badly in the wee hours, and when I sit down. It's now affecting my hip and knee joint for the past few months to the point that when I stand, it hurts as well. When I stand after sitting a bit my hip "sinks" with the pain. I have lumps below my hip joint, too . . . read somewhere that they are associated with Lyme as well.
I went to a neurologist and he took my blood, saying he was going to check my B12 levels. He thinks everything I"m experiencing with Lyme is a B-12 deficiency. I'm concerned my sciatic nerve will be permanently affected.