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Posted 2/23/2015 11:19 AM (GMT -5)
Okay...next question in what seems to be a series of "twenty questions" 😄

Has anyone experienced weight loss? I cannot seem to keep my weight at 140. I eat a lot (gluten free) but seem to drop to 136 every morning and end at 140 by end of day. Four pounds of weight loss per night seems like a lot. Scares me as that is indicative of als symptoms...

Thoughts?
Posted 2/23/2015 1:07 PM (GMT -5)
So, are you holding at 136 lbs now? If so, sounds like you lost weight, but aren't continuing to lose it? I only lost two lbs from night to morning, though.

When my symptoms first hit (pinched nerve/radiculopathy shoulder blade, arm, hand) - I lost 13 pounds in weeks...but I was eating the same and not doing anything physical - so not burning the calories. I went from 138 to 125 lbs.

I struggled to hold it there...ate as much as I could. I did not start gaining it back until I started Lyme treatment.
I am now 131 lbs. and holding.

Weight loss can definitely happen with lyme disease.

Don't worry about the questions...we want to help you.
Posted 2/23/2015 1:20 PM (GMT -5)
LOL!! Definitely don't worry about the questions!!! I think I'm up to about 2,000 now!! turn And as Girlie said, that's what we are here for!!! :-)

Some people loose weight and some people gain weight from Lyme. Since you are losing weight, be sure that you are eating lots of healthy fats and calorie dense foods - nuts, nut butters, avocados, bananas, yogurt (if you are doing dairy, but make it greek yogurt for the active enzymes), and be sure to snack throughout the day, including a "bed time snack".

If you can't control it, then you will need to talk to your doc about it, as you don't want to get too thin!
Posted 2/23/2015 1:23 PM (GMT -5)
Holding at 136 Girlie. I was around 154 when my symptoms started to really go down hill and lost it pretty fast. I am sure the other DX I was given didn't help matters either. It just seems like 4 pounds weight loss at night is fairly high amount.
Posted 2/24/2015 9:03 AM (GMT -5)
Although I contracted Lyme in April 2012, I didn't start losing weight until November
of 2013. I have gone from 175 (when my thyroid went out eight years ago I went from lifetime 135 to 208) to 142-3 in a little over a year (went from size 14-16 to size 6-8). I'm 5'10".

I wake up nauseated and was vomiting a lot until I started taking Ranitidine 2x a day (otc) in December (my non-LLD recommended it). I still get nauseated, esp. when I get up in the morning. This makes it hard to eat much, I have lost interest in food (except for the two boxes of Girl Scout Thin Mint cookies ). Also, it's difficult to eat properly on a tiny budget (@$40/wk), although I do like smoothies made with spinach, mixed frozen berries with turmeric, ground flax seed, sometimes greek yogurt, and lots of fresh ginger. Have not found an LLD yet, and am afraid of wasting away.

Just throwing in my weight loss experience.
Posted 2/24/2015 9:22 AM (GMT -5)
Weight loss is a big (little) issue for me lol..... Used to weigh a very healthy 132 lbs. now weigh 94 lbs. I eat well but am unable to put on any weight. Also have extreme muscle wasting and weakness. Cannot wash my hair in shower arms will not reach up. Do not know what to do, have tried everything I know.
Posted 2/24/2015 1:58 PM (GMT -5)
Quilty, are you using things like protein shakes and meal replacement shakes as well? Do you have a LLMD that is very aware of these issues?
Posted 2/24/2015 3:06 PM (GMT -5)
Sailorkim, I've been thinking, I can vary 5lbs in weight in a 24 hour period. I've always attributed it to variation of water weight. Are you keeping hydrated? Of course you are. Paying attention to electrolytes? Drinking before bed, keeping a glass of water by the bed side?
Posted 2/24/2015 7:58 PM (GMT -5)
traveller, Yes I take two Brown rice high protein shakes every day, from my nd. My nd is studying under Dr k and will be starting me on dr k's protocol as soon as he has it here. I am already on some bee products. I eat healthy, lots o veggies, bone broths, avocados, pastas,. Not a sweet tooth, love the savouries. I take a muscle mass whey protein called serious mass, two scoops a day. Lots of supplements need more hours in the day to get them all down.
Have just rented a bio resonance infrared machine from b.c. And am into week two. Stopped the Buhner, it did not seem to make me herx. I am taking lauricidin for now but look forward to getting on Dr k's protocol.
I have heavy metals and will start iv chelation next week. Have done thre parasite cleanses. Do not understand why the weight will not go on.
My nd is not yet ILADS, he decided to do Dr k first as he thinks Dr k is the one he wants to follow. I am sure ILADS will come next.
Posted 2/25/2015 9:10 AM (GMT -5)
What's most important right now is that he is following what another LLMD is telling him - so he's not relying on his own knowledge and is able to 'brain storm' with Dr. K.

I am very happy to know that your doc is taking this very seriously!! Sounds like you are doing all you can do right now, so try to hang in there!! Please do be sure to keep us updated on how things go, and when you start to gain weight!! I'm one that gains weight when I get these infections, but I still don't understand what it is that triggers either one in people when they have these infections, other than everything in the body can be affected, so it could be any number of things really.

Do you have an idea of when you might get to start the new protocol? Best of luck on the IV chelation next week!!
Posted 2/26/2015 9:33 AM (GMT -5)
Sailorkim, I want to apologize for "hijacking" your thread. I realized that all I did was talk about my weight loss, which I though might be helpful but after mulling it over realized it was your thread with your questions, and my response had nothing helpful to add to your dilemma.
:-(
Posted 2/26/2015 11:52 AM (GMT -5)
Like traveler said, some people gain weight with lyme others lose it. My TCM specialist said that since the body is using its energy to fight something some people start to lose weight. I was one of those people. Plus, the extreme diet change doesn't help with putting on weight either. What I have found helpful is protein shakes, sweet potato and other starches, gluten free bread (make sure you look at the ingredients some contain sugar), avocados, beans.

Weight loss is definitely an issue for me - i went down to 100 lbs (I'm 5'7).The minute I started to get my Lyme symptoms I was dropping weight fast. But when I started to feel better I gained 4 pounds, which is very little, but the fact that I was able to gain anything is an accomplishment.
Posted 2/26/2015 12:43 PM (GMT -5)
With my background, weight loss or gain is right up my alley. To the OP, 4 lbs seems a little high for daily fluid accumulation. Like mentioned earlier, you are probably dehydrating during the night. You can often have a dry mouth upon waking when this is the case. It can also interrupt sleep patterns.

I have some great weight loss/gain stories but I won't bore you with them. I can talk about this for a while.
Posted 2/26/2015 7:52 PM (GMT -5)
Thank you all. I appreciate all comments. This is a scary disease so everything we say and post helps one another.

I do drink a lot of water per day. Just seems extreme to loose 4 pounds every eve to am.

I try protein shakes too. ahhhh Lyme disease...
Posted 2/27/2015 4:19 AM (GMT -5)

Sailorkim said...
Thank you all. I appreciate all comments. This is a scary disease so everything we say and post helps one another.

I do drink a lot of water per day. Just seems extreme to loose 4 pounds every eve to am.

I try protein shakes too. ahhhh Lyme disease...

Drinking a lot of water without adequate sodium intake can dehydrate you. Eating a high protein diet without adequate sodium intake can dehydrate you. Fluid retention can be related to adrenal issues as well.
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