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Tingling in arms & legs

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Posted 4/1/2015 4:31 PM (GMT -5)
Why are my legs and arms tingling? It's almost a kind of burning feeling of my skin, mainly shins but creeping up over my thighs, and also in my arms (mainly forearms) :-/. Definitely increased since starting minocycline and rifampicin a couple of weeks ago. I know some of you have suggested I could be herxing. Is this part of it? Is it a bartonella herx do you think? Lyme herx? I've been treating for 18 months but trying to address possible Bart now - all my symptoms are neuro and I have persistent dizziness/wooziness which I wanted to address, but I think it's got worse since starting this combo, plus all the increased tingling/burning feeling . . . :-/
Posted 4/1/2015 4:48 PM (GMT -5)
Flossie,

It sounds like a Bart herx to me. I get pain in my shins / legs and forearms from Bartonella. The tingling and burning in those areas is most likely a result of Bart. Rifampin is supposed to be powerful.

I get dizziness sometimes too. I believe that could be a Lyme herx. I can't say for sure. But it sounds probable.

I would recommend upping your detox. Hang in there!!!
Posted 4/2/2015 6:08 AM (GMT -5)
Once again, I'm voting herx.

I developed tingling after starting abx so I know it's a herx. The sensations have changed as I moved forward with treatment but I know they represent herxes since I didn't have them before starting treatment.

Dealing with Lyme & Co's is the weirdest (and often uncomfortable) experience.

Hope you feel better soon!!
Posted 4/2/2015 9:05 AM (GMT -5)
I'm having similar symptoms on Rifampin, Biaxin and Plaquenil. I think it's a bart herx.
Posted 4/2/2015 10:22 AM (GMT -5)
Our daughter didn't have tingling in the shins and forearms but did have substantial pain there which increased with herxing caused by bartonella treatment (biaxin, rifampin, A-Bart).

Bartonella has a tendency to infect bone marrow causing symptoms in the long bones which contain a high proportion of that tissue.
Posted 4/2/2015 2:33 PM (GMT -5)
My left arm and hand tingle as well as my left leg occasionally. For what it's worth, I was told that it could be due to low B12 eventually leading to demyelineation (spelled wrong). A couple months after I started weekly B12 shots and daily lozenges the numbness has mostly gone away. Last month i tried to quit taking shots b/c my insurance doesn't cover them much but the tingling came back.
Posted 4/2/2015 2:34 PM (GMT -5)
How's the detoxing going, Flossie? Did you find it's helping?
Posted 4/2/2015 3:25 PM (GMT -5)
Thanks so much for your replies. Hopefully it is a herx then. I have felt a little better today I think, though I've been quite busy today so it takes my mind off it a bit, but when I sit down in the evening to watch tv, i can feel the tingling in my legs and I can't get comfortable. I'm trying to drink more water, and some of it with lemon, but other than that, haven't upped the detox really yet. I need to look at getting some pinella, burbur and parsley, which were all recommended to me on the forum. Easter holiday weekend now so will have to look online next week - I think amazon do them. Maybe the extra detox remedies would be helpful.

Interesting about the b12 shots landslide - I was actually prescribed these a few months ago but haven't taken them yet as I'm scared of injecting myself and don't really know how to do it :-(. I am taking b12 supplements though.
Posted 4/2/2015 3:32 PM (GMT -5)
Detoxing would definitely make you feel better, no matter what way you do it. I can't emphasize that enough!
Posted 4/2/2015 3:40 PM (GMT -5)
I drink green tea and have recently added a green tea supplement . . . Is that good for detox?
Posted 4/3/2015 9:04 AM (GMT -5)
Yes but you need something stronger than just tea and water
http://www.tiredoflyme.com/detox-methods.html
Posted 4/3/2015 9:27 AM (GMT -5)
Flossie I've had Lyme & Co. For 16 yr maybe longer and have had burning and tingling in my feet, my neck and now my left hand. I had it before treatment. I guess it depends on how long you've had the infection. I'm on rifampin, zithromax and Tindimax and my herxing seems to be really bad pain in my back, butt and legs that pain pills won't really help much. So really hard to say.

Do you have any mutations? Seems like most of us that get Lyme have these issues.
Posted 4/3/2015 10:01 AM (GMT -5)
FlossieUK-

"herxing" and detoxing -

Herxing can be a widely used term defining symptoms of not so-exact origin, during abx type use. No one knows for for what their "herxing" is really from.

If someones body detox pathways work in "stellar" fashion, (minimal methalation mutations) they might not even feel a herx. If their methalation detox pathways have gene mutations, just abx itself can cause a "herx" feeling as abx is, itself a toxin to the liver which is an integral part of the detox pathway. Of course, adding additional debris from die-off can make a detox gene mutation compromised individual feel even worse.

These are possibly why there is so much variation in peoples "herxing" levels. Their "herx" severity is partially due to their genetic make up and/or methalation mutations. This also can effect the degree to which detox supplements are effective or not. And probably all the better reason to use a well rounded detox plan.

Some LLMDs keep this in mind by monitoring liver enzymes during abx use. At a certain elevated point, detoxing almost stops, and this is the reason some LLMD's will temporarily halt abx use to help the liver heal and do its job once more.

Genetic mutaion testing can be an eye opener, (as well as confusing).
Posted 4/3/2015 2:33 PM (GMT -5)
Thanks so much sarah, revive and astroman.

I hope the herxing gets easier for you revive. I've also had tingling for a long time, but it's definitely worsened since starting this new drugs combo (minocycline and rifampicin). I'm hoping these things are signs that the drugs are working, for us both . . .

I haven't suffered too much with herxing up to now, so that was interesting info, thanks astroman.

And thanks for that great resource on detoxing sarah - really helpful, thank you!
Posted 4/4/2015 2:42 PM (GMT -5)
Another thought - Tingling in arms & legs can also be from B12 deficiency.
Posted 4/4/2015 4:29 PM (GMT -5)
Thanks astroman. I'm taking b vitamins orally, but must confess I still have the B12 injections I was prescribed a few months ago as I don't really know how to administer them, so keep putting it off :-/. I do just think that the tingling is another of my neuro lyme/Bart symptoms though - I've had it to varying degrees since becoming ill two & a half years ago, but it's just that it's got worse since starting my rifampicin/minocycline combo.

I have felt slightly better I think this last day or two, so I'm hoping maybe it IS a herx, and it's wearing off slightly, or my body is just sdjusting and getting used to the new drugs. Either way, I may have to bite the bullet and attempt to up the dose of rifampicin next week, but am a bit nervous that it will make things worse again. Hopefully it's doing something though!
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