ALS and Lyme

Hi All,

Has anyone had any personal experience with pursuing Lyme antibiotic treatments when they have been diagnosed with ALS? My wife was officially diagnosed with ALS in late December of 2014 after having noticed nerve problems in her left arm last August. Of course the neurologist believes it is not possible her ALS is actually Lyme, and that is fine as I fully get where he is coming from.

She started seeing a LLMD not long after the ALS diagnosis and has been through a few different oral antibiotic regimens in that time. about 3 weeks ago, she started her first IV antibiotic treatment with Azythromycin. She continues to see no improvement and is actually getting worse, although thankfully not substantially. We've certainly heard one can expect to get worse before they get better, but it is still pretty disconcerting.

I guess I am just curios if anyone is further along on a similar path, having been diagnosed with ALS. I am not looking for anecdotal stories as there are plenty of those out there on the net. I'm really hoping for someone with personal experience, or someone speaking of a loved one's experience. I'd ideally like to hear what you've/they've done, how long it is taking, and most ideally...has anyone been "cured" or even experienced some degree of positive results for an extended period.

Thanks in advance for any thoughts or info shared!

Thank you Girlie, it's encouraging that there may be at least a couple others visiting this site with somewhat similar experiences.

And yes, we are very familiar with Dr. Martz and his story. The experiences of the people in Under our Skin and the sequel are major factors in why we remain encouraged and hopeful.

Thanks!

Jasman
Smart of you to post here and I hope you get informative responses. Might take a few days so don't feel shy about "bumping" up the thread to the top of the page every now and then to catch people's attention.

I just want to add that 3 wks is a very short period of time when you're treating lyme, which is multifaceted and multidimensional, and SO MANY factors are at play with an infection of this complexity: health context; other potential infections/virual/fungal loads that most ticks carry; detox and methylation function, which varies in each person and can be impacted w/ DNA mutations that prevent successful mechanisms; and several other roadblocks to processing medication and treatment. Without a comprehensive approach to treatment it is very difficult to understand what is working and what isn't and what to do about it.

If you haven't already, please read the "New to Lyme?" thread at the top of the page, which will give you the cliff notes for what we mean by a comprehensive approach to treatment, as she may be on the exact road she should be on, but needs some careful vehicle maintenance in order to keep moving along.

You're in good company here, don't hesitate to ask questions or ask for support for you, as well. As Garden Peace stated, spouses are special people.

p

Post Edited (Pirouette) : 5/27/2015 6:17:08 PM (GMT-6)

Btw 3 weeks isn't nearly enough to see results. She's got to wait at least six months honestly...but she may very well see results in a week from now. It's that sort of thing. It's very slow progress, but very real progress. That's what I'd say about healing Lyme and co-infections.

Watch the youtube videos of Dr Thomas Rau and study the diet of Dr Terry Wahls. The underlying factor for both of these physicians is that they are replenishing the nutrients that our body has lost. It's not the normal stuff, it's the abnormal stuff that we don't get with the foods we eat now. Things like chromium, lithium, cobalt, copper, selenium, manganese, things like that. Some of the transition metals that we need are actually toxic and we can't supplement them. That is why trace amounts must be obtained through the foods we eat. Between GMO's, pathogens stealing our nutrients, and a diet deficient of the nutrients we need, a lot of things can be explained.

Thanks Everyone. Helpful info!

Cat, I really appreciate your post. I am pretty sure my wife will reach out to you via email, perhaps over the weekend. She'd be the better one to check in with you than me. Thanks for being open to sharing your experience thus far.

Thank you Dancing Bear. That is sweet of you to say.
Jasman, You are certainly welcome. I am always happy to assist any way I can. I will watch to see if your wife writes.

Go to http://lymestats.org, scroll to very bottom, ALS is mentioned.

Here is someone who overcame ALS and Lyme


http://www.blogtalkradio.com/drjessarmine/2015/06/02/cured-of-lyme-and-alsan-interview-with-dr-sue-massie

It's so nice to see you helping your wife so much. I'm glad you found us. It's better late than never! Tell her I wish her the best!

Hi, Jasman,

I just ordered a book called "The Healing Code" by Drs. Alexander Loyd and Ben Johnson. According to what I could read of the book on Amazon, Dr. Johnson used the healing code methods to "cure himself" of ALS. The book deals with healing of the heart/emotions from past trauma and wrong belief systems (which the authors say is the primary contributor to illness). I know personally that years of succumbing to lies (I was verbally/sexually/emotionally abused by an older boy from about age 13-21) and distrusting God's love & faithfulness has been devastating to my health & vitality. I was just diagnosed with Lyme in February after finding a tick bite rash about 15 years ago (I was clueless about Lyme then). My illness symptoms didn't really kick in (severe chronic insomnia, mental confusion, adrenal problems, anger...) till I was married 10 years ago at age 30, and the trauma of the past resurfaced and grew. We've spent years on doctors and expensive diets/supplements to try to cure me but with little success. I've struggled for years with believing God's goodness in my head but doubting in my heart. Thus far, since finding "The Healing Code" a week ago, I'm finding that continually quoting God's truth to myself on a daily basis (as recommended in various ways in the book) is increasing my faith and bringing hope! Another thing that has also helped me the last few months is the "iDisciple" phone app.

FYI: My dad died of ALS almost 22 years ago. We think now that he likely had Lyme, also.

Praying for your wife's complete inside-and-out healing!

ByGraceAlone