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please help! intracranial hypertension from doxy?

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Posted 5/31/2015 3:49 AM (GMT -5)
I'm in day 3 and I want off of this horrid drug. My head feels pressure, my eyes are blurry, my arm and neck hurts, my heart is pounding, my spine hurts, my stomach hurts, I'm shivering. My tongue is fat, my hands are tingling... Maybe some of this is Lyme. I'm in day 11 past tick bite, day 3 of doxycycline.

Some of these I could handle if I didn't think or read that this drug can do permanent damage to people. I don't want to go blind or have a stroke. I'm hyper aware of my body after being sick for many years, and this is horrendous.

I know that Lyme is much worse. I get it. But how do I know if I'm being hurt by this drug? My body is very sensitive - has been for years. I got skin burning from just being under the fluorescent lights at work yesterday. And the head pressure... There are so many horrid side effects of this drug.

Or, perhaps it's Lyme showing its ugly head on day 11 already?

Post Edited (mtmand) : 5/31/2015 5:40:00 AM (GMT-6)

Posted 5/31/2015 9:08 AM (GMT -5)
I'm so very sorry, Mtmand!! Sounds like you have are herxing.

Be sure you are taking the Doxy with food to help your stomach, drinking plenty of water to help flush those toxins, and then increase whatever it is that you are doing for detoxing. If you wouldn't mind listing what you are doing now for detoxing, we can help you with suggestions!
Posted 5/31/2015 11:40 AM (GMT -5)
Mtmand - I'm trying to remember - did you get 100 mg twice daily of doxy...or were you able to get the dosage needed of 200 mg twice daily?

If it's 200 mg twice daily, and the symptoms are too much for you...and don't start to ease up a bit with effective detoxing, then back off to 100 mg twice daily....when you feel a bit better, you can go back up to full dose.

Yes, what Trav said - let us know what you're doing for detoxing... You need several, not one detoxing methods to help your body.
Posted 5/31/2015 1:46 PM (GMT -5)
I could not handle doxy as well so.i know how you feel pleas hang in there hug
Posted 5/31/2015 3:08 PM (GMT -5)
If you cannot handle the dosage you need to dose down. Speak to your dr regarding side effects.
Posted 5/31/2015 8:04 PM (GMT -5)
I'm on 100 twice a day - can't really go down from that. I'm actually pretty sure there's a combo of stuff going on.

I was taking Vit a unknowingly in a multi mix and Doxy reacts with Vit a to cause bad head pressure - i didn't notice the Vit a till today, so I'm off that now.

The other thing is my blood sugar may be going low. I'm supposed to be eating 4 times a day, and for the last 3 days on this drug I'm doing 2 - cause I'm nauseous. It's always better after I eat. Not completely better but 70% better.

Now I still have other symptoms which could be Lyme or doxy - sore neck, tingling and sore spine, head pressure - really hate that one - it's not a headache as much as an uncomfortable feeling of doom, and heat in my head.

For detox I'm drinking lemon water, dandelion and ginger tea, Epsom baths every night with skin brushing before. I also take milk thistle with every meal, probiotics and the few minerals and Vitamins I can 2+ hrs apart from Doxy.
Posted 6/1/2015 8:43 AM (GMT -5)
You can drink ginger tea several times a day for your nausea.

And you can take a binder, like activated charcoal, zeolite, or cholestyramine (by prescription). The only problem with them is that they have to be taken 2 hours away from everything else other than water, and drink plenty of water when you use them. You essentially have to have a 4 hour time period where you will not be eating or taking any meds or supplements, as the binders will bind to them instead of the toxins. I found taking this at night is the best, as all I'm usually doing is getting up to go to the bathroom, not take meds or eat.

Can you eat nuts? I have found that I can nibble on nuts even when I'm not at all hungry, just to have some food going in me.

You could also add in oil pulling - it made a difference for me.
Posted 6/1/2015 9:06 PM (GMT -5)
I take diamox for my intracranial hypertension and it really helps
Posted 6/2/2015 3:54 PM (GMT -5)
Can you have a followup visit with your MD, so possibly a different medication? The MD would probably want to know what is going on.
Posted 6/4/2015 9:30 AM (GMT -5)
I went in, no concern on their part - not even an exam actually. I guess I would look different if I actually had it? Lol

They said to come back if it gets worse.

I've been trying to keep my sugar up and that's helped a bit, plus I noticed it messes with my blood pressure. Both off those could've contributed.

Actually now my bigger concern is that I'm 2 days from finishing my paltry 10 day course of doxy and I may only be able to get a couple more days from them.
Posted 6/4/2015 11:16 AM (GMT -5)
Keep detoxing heavily and doing what you can to keep your blood sugar up in a healthy way. I hope that you continue to feel better!!

Is there any chance that can you get in to see another doc, hopefully a LLMD, or at least a "Lyme friendly" doc this time?
Posted 6/8/2015 12:19 AM (GMT -5)
So the reaction was due to the milk thistle I was taking to help detox. I figured it out after one reaction came swiftly following a pill. I did one day off, felt fine - no issues - then next day took one and within 20 minutes u had the full blown reaction that I previously thought was from Doxy.

Don't know why my body would be so against this supplement. Maybe my liver is too congested and hates everything. Maybe my bacteria load is very high and I'm herxing too much. But the milk thistle only supports the liver - doesn't detox it, so I don't know. Some said on another forum that it could be a cbs defect - sulphur issue. Don't know. Can't wait to finish last 3 days of doxy anyways, and get back to healing my af, gut, and thyroid.
Posted 6/8/2015 12:37 AM (GMT -5)
Maybe you have an allergy to ragweed - Traveler mentioned this before - that you shouldn't take Milk Thistle if that's the case.
Good that you made the connection right away.
Posted 6/8/2015 1:29 AM (GMT -5)
I took Doxy for a year.

I feel confident that your symptoms that you listed with regards to Lyme are due to Lyme disease/herx and not a side effect of the medicine itself. Nearly every symptom you list there is classic Lyme.

Food should be taken with doxy to reduce nausea.

When I first started doxy - at the 72 hour point - I had the worst migraine with very intense nausea. I was literally dry heaving every 15 minutes for 12 hours. That did end. I also had a feeling at one point like my body was floating in mid air (very strange!) even though I was lying on the couch. 10 days into the treatment I developed a bullseye rash even though I was in the chronic stage of the disease (3 years in).

Post Edited (SLML) : 6/8/2015 12:36:12 AM (GMT-6)

Posted 6/9/2015 10:10 AM (GMT -5)
As Girlie mentioned, I have an allergy to rag weed and can not tolerate milk thistle, although I had liver pain/pressure, not brain pressure - but that could just be differences in how my body reacts and how your body reacts.

And as Girlie says - I just avoid using milk thistle and use other natural means to flush my liver a couple times a year.
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