It's been mentioned before, but Huffington Post has done a # of articles. Here is one, I excerpted below entitled: "This is What Lyme Feels Like":
"It's a beautiful day -- stunning actually -- but I've been lying in bed since one in the afternoon. I's now almost six and I've wasted yet another day thanks to Lyme disease.
...Today, it feels like I've been hit by a truck. Every muscle hurts to touch....
I feel like the life has been literally sucked right out of me. The fatigue is overwhelming... As tired as I am, the ***** of it is that during these cycles, I am awake during the night. I lay there tossing and turning, tossing and turning, trying not to wake my husband.
There's also another side of Lyme people don't often talk about
-- the anxiety, fear and depression that hangs a dark cloud right over your head....
But this is my new "norm" so I deal with it. This is what Lyme disease feels like.
We "Lymies," which is what we call ourselves, don't like to share the truth with our friends because it makes us look weak. It's not a disease people understand so we end up feeling alone and scared. We paint fake smiles on our faces when we see you and tell you that we feel fine. We add smiley faces and exclamation marks to text message so we "sound" good. We pretend like nothing is wrong... except you can't hide from your partner. Sadly, he or she sees the truth about
the torture this disease brings.
The hardest part about
Lyme disease is that it constantly teases you. You feel better for a while and you think you've finally won the good fight. You do what you're supposed to do: You eat well, you takes your meds and supplements, you exercise. You do everything your doctor tells you to do, yet it still comes back. And when it comes back, it comes back with a vengeance. You feel like the underdog boxer who is beating the heavyweight champion in the 11th round. It's so exciting to be winning until the champ knocks you out in the 12th.
Lyme disease has a cycle. I think it's different for everyone. I once went two full months when I felt really, really good. To feel "normal" again was simply amazing and I was so incredibly grateful. But I am mostly living a four- to five-week cycle of hell....skyrockets during these periods. I don't know if it's the Lyme disease or one of the co-infections (Bartonella, Babesia, Ehrlichia, or Anaplasmosis)... All I know is that it sucks.
So I'll do what I need to do to get through this. Hopefully, this terrible spell will only last a couple of days. I will lay low, sleep as much as I can and wait. Wait for the pain and fatigue to get better and, more importantly, wait for a cure."
http://www.huffingtonpost.com/molly-napolitano/what-lyme-disease-feels-like_b_7539130.html
Post Edited (happyjo) : 6/13/2015 11:04:16 AM (GMT-6)